15 Years of Warfarin

[petert223hkj]

Been on warfarin which has always been up and down but am blessed with a great group of Phlebotomists at beacon medical in Plymstock who have all been very caring. To answer to the pain problems as we cannot use Voltarol but have been prescribe 5% ibuprofin gel which helps but not totally. Still have to thank God ,all the medics and my wife's care that I am still alive with my metal heart valve which ticks away thankfully

A good saying is you lay down and die or get up and fight!

[Lure2]

Hi,

I wonder if you fight against a diagnosed Antiphospholipidsyndrome?

[petert223hkj in reply to Lure2]

HI

I am not familiar with you problem but a quick read shows it is very serious. My comment about get up and fight is about trying to encourage a positive attitude to life's problems which when you are down can be helpful

[Lure2 in reply to petert223hkj]

Why I asked is because this is a site which focus on Antiphospholipidsyndrom which we all have here. Before diagnosed and also afterwards we have to fight hard to be believed and to get a Specialist of autoimmun illnesses who understands that we all have too thick blood which has to be thinned to avoid a lot of dangerous symptoms and further trouble.

APS is a rare illness and that is the tragic thing for us, as so very few Doctors know about it. Exercise for example is one of the best ways to feel better. That makes the blood flow easier.

You are quite wright a positive attitude to life´s problems are always helpful!

Best wishes from Kerstin in Stockholm

[Fra22-57]

Don't know if this might help you but you can get 10% ibuprofen gel

[MaryF Administrator]

Have you got a Hughes Syndrome/APS specialist helping with your care? MaryF