APLS specialist in Brisbane Qld Australia

[rockcats4]

Hello, does anyone know a specialist in this area in Brisbane?

[Ozchick]

Sorry not in QLD- have you approached your GP and asked for a list of Rheumy in you area and asking them if a) they've heard of APS and b) if perhaps they know of any Haematologist who deals with it.

[HollyHeski Administrator]

Can't personally recomend but maybe these links may help?

metronorth.health.qld.gov.a...

qml.com.au/AboutUs/Patholog...

betterhealth.vic.gov.au/hea...

[suntap]

Hi, I am in Brisbane; what part of Qld are you in? As far as I can find out, there isn't an APS specialist in Qld. My GP originally referred me to an Immunologist, but he retested my bloods and said i was negative, even though I had been on blood thinners for more than 6 months. He then referred me to a Rheumy who was just a mean little man. So I started to educate my Gp, and he studied up himself. I would tell him about things I read on this forum and print out some articles on APS that have been linked here. So I have given up on an APS specialist and see my GP for everything. He has been my doc for almost 30 years and took me seriously from the beginning. He believed me completely about my ailments because as he said, he knew me and that I was very rarely sick, apart from my migraines.

So that is a long winded way of saying, if you can't find an actual specialist; find a doctor you believe in and who believes in you, and work together. Not ideal, but nothing with this disease ever is. Sorry; stay well.

[KellyInTexas Administrator in reply to suntap]

This is so true! I’ve had to do a lot of this myself being in Rural Texas.

I’ve kissed a lot of toads to find a few Princes.

Collaboration here on this forum helps - it has helped me as well.

I’ll post something on migraines for you also.

( I’ve found relief!!!!! amovig! It’ a biological that works on the specific antibodies that are at play with migraines.)

It’s a bit of a complex relation involved with CGRP.

I’m not sure if it’s availability outside of USA.

It’s pricy, but I have info on the non profit in the USA and all the information and phone numbers to charity in the USA .

I will be posting all information very soon. This evening I’m setting time aside for it.

[MaryF Administrator]

Please take a look at the names on here, they may be worth contacting. onlinelibrary.wiley.com/doi... MaryF