Mums fine and so I am, ambulance called for mums neck pain I, just thought I would inform you all that the paramedic had no idea what antiphospholipid syndrome was, he was the junior one but the senior one didn’t have a clue either, he looked it up when I told him too
Mum hasn’t got Hughes syndrome, hopefully they will have learnt something
Glad your both ok. Had to smile about paramedics, please be reassured every crew that worked with me, now know a lot about Highes/APS!!
It's up to all of us to educate others sadly.
Way to advocate!!!
Greetings to your mother- tell her she has warm wishes from all over! ( and that we are quite fond of the lovely daughter she has raised so well.)
We’re having to educate a lot of people about APS
So, glad to hear that you are all well.
And THANK YOU FOR TEACHING THE MEDICS ABOUT APS.
I HAVE A BOOK I HAVE IN MY HAND BAG, AND PROF HUGHES WROTE IT.
110 PAGES OF APS FOR STUDENTS.
GREAT BOOK.
TAKE GOOD CARE LOVE.
It will take time I'm afraid. It's not something that is taught to ambulance staff. I work for the ambulance service and had never heard of APS until I was diagnosed with it. I am spreading awareness of it and hopefully it will be widely known soon.
Neither did my then GP when I asked her to send me for blood tests. She sent me for the wrong tests which is ridiculous.
Glad your mum doesn’t have Hughes and pleased you’re both ok x
Good for you, I have a couple of paramedics that live near me, when in training they had to pick various conditions to study, and I was pleased to say they studied for some of their modules, Lupus, Hughes Syndrome/APS and Sjogrens. I was really pleased. MaryF
aps positive and feeling like an old man I am 37
High antibodies but Dr states I do not have APS
Possible recent diagnosis of antiphospholipid syndrome
Do I need ongoing consultant support?
Charity run by my son for Hughes
