A reminder regarding Patient's Day - Hughes Syndrome A...

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A reminder regarding Patient's Day

MaryF profile image
MaryFAdministrator
16 Replies

For those of you attending, (and we are now sold out), and, we have changed our location due to outgrowing the original location. We will be holding these regularly if you missed out this time around:

MaryF

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MaryF
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16 Replies
KellyInTexas profile image
KellyInTexasAdministrator

Fantastic news all ‘ round!

MaryF profile image
MaryFAdministrator in reply toKellyInTexas

Thanks xx MaryF

More information, please. . . .?

MaryF profile image
MaryFAdministrator in reply to

This event is fully booked, however I will be sure to advertise the next, swiftly and on here. MaryF

purple profile image
purple

It is good to know that so many patients are interested. I hope that there can be consideration for a future similar event that is held in the North of England, maybe Manchester or Leeds? Thanks Mary.

MaryF profile image
MaryFAdministrator in reply topurple

I will let you know, mainly they are in London, but I will always give good notice for anything which is on an actually affordable! MaryF

rankin1st profile image
rankin1st

Hi Mary is this the conference that was in Manchester as I just signed and paid really confused

MaryF profile image
MaryFAdministrator in reply torankin1st

Hi, no, this one is in London. There is another event going on in Manchester. MaryF

purple profile image
purple in reply torankin1st

Hello, I am going to the International conference in Manchester on Friday 20th for the patients day. Hope to meet you there?

rankin1st profile image
rankin1st in reply topurple

Hi purple yes that will be nice as Am going on my own as hubby not well enough to go.

purple profile image
purple in reply torankin1st

I will be on my own too. I use a black rollator or sometimes a pink seat trolley thing because of orthostatic tremor! So should be easy to spot! See you Friday hopefully.

rankin1st profile image
rankin1st in reply topurple

Will try and connect:)

rankin1st profile image
rankin1st in reply torankin1st

Sorry I didn't get to see you hope you enjoyed the conference:)

rankin1st profile image
rankin1st

oh ok hope i chose the right one?! this is all new and a bit confusing, thanks for the clarification.

MaryF profile image
MaryFAdministrator in reply torankin1st

A different outfit, but some of the same people lecturing, so fine, as long as the information gets out there, it does not matter who is doing it. MaryF

Preston would be good, too.

It helps people coming from Cumbria and further afield i.e. Scotland!

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