Back from plastic surgeon: Well All the... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Back from plastic surgeon

jetjetjet profile image
30 Replies

Well All the Doctor would call it was a MASS - - the mass is right side of nose downward an inch at a 45 degree angle and up from the right side of the corner of my lips up an inch at a 45 degree angle . The plan I guess is to cut along the right side of nose and take the mass out that way as to hide scar and then off to pathology with it to be tested .- At the present procedure is scheduled for OCT 17 Th BUT I a being put on the RED list -so the first cancellation that has at least 5 days prior to procedure date I will take {i have to start Bridging for this } the surgeon will accept 1.2 INR the morning of the procedure , this shouldn't be a problem - I have gotten it down in 3 days before -BUT that was with my past nurse at the anticoag clinic - my new ones WELL i am not quite sure - I think they would go with it but not positive .The chance of having a risk of infection - bleeding -asymmetry-deformity and positive margin are present and the doc. said he discussed it with me and I wanted to go forward BUT how else am I going o find out if it is cancerous- and there is lymph nodes there so i would like to see it gone -scaring doesn't bother me much I have zippers all over my body now so what's one or two more ????? and at my age I am not exactly in the dating game !! so going forward makes sense to me . I asked him about the mass under right side of Jaw bone but didn't get a reply -he and his crew of 2 left said they would be back but never did -he did send his nurse in to go over Bridging ?? But I will be talking to him again and plan to know what he plans for that .He talked more to the other Doc's than me . that will end I assure you . that's it for now anyways . :-) .

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jetjetjet profile image
jetjetjet
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30 Replies
rach1081985 profile image
rach1081985

Wishing you all the best and speedy recovery xxx

jetjetjet profile image
jetjetjet in reply torach1081985

Thanks Rach .

Peecue profile image
Peecue

Hope it all goes well thoughts are with you

jetjetjet profile image
jetjetjet in reply toPeecue

Thanks Peecue

lupus-support1 profile image
lupus-support1Administrator

It must be a scary time for you. Wishing you “perfect healing”.

With good wishes,

Ros

jetjetjet profile image
jetjetjet in reply tolupus-support1

Thanks

You know with all my Dia. medical problems {and there are many - 26 !! } one isn't the bad healing thing - I heal extremely fast , maybe because of the triple positive status ?? who knows . Even at as a youngster {many moons ago i might add !! } i always healed well {good thing , i was always getting busted up it seems thru life } I will be 10 years with APS Sept 1 2019 so i was 54 when i landed in ER loaded with blood clots all over body and lungs . and i think it was bad 2 years before that . Sop i hope for a quick healing time as to be able to go on with knee and spine and back injections . C & j

diww1 profile image
diww1 in reply tojetjetjet

I hope you don't mind me replying to your post .. I noticed you mention what you've described as your Dia health and you say of which you have 26 .. do you have 26 diagnosed conditions as I have over 30 .. people find it hard or Impossible to believe someone can have so many .. I've never met anyone with anywhere near the number I have so your comments jumped out at me .. best wishes

jetjetjet profile image
jetjetjet in reply todiww1

Yes you are correct . many if not 90% related directly or indirectly to the APS because of blood -lack of or clots. may be a couple more coming as i have been thru many test's with no defined conclusions.left leg and groin were last ones ,4 of them to be exact . we seem to get tat a lot as i have read on here . common . And type in anytime - glad to see you are not afraid of posting this - i know i use to have second thoughts BUT the truth IS the truth . regardless of what others may think .And to include Doctors - i have had pretty intense talks about this very thing when starting with new Doc's - but paperwork doesn't lie - so i win -but shouldn't have to go thru this BUT .?? Thanks C & J

jetjetjet profile image
jetjetjet in reply todiww1

Where do you hang your hat as where do you live if you don't mind me asking ?

Lure2 profile image
Lure2

Good Luck from Sweden!

Hugs!

jetjetjet profile image
jetjetjet in reply toLure2

Thanks my Swedish friend - you are always there - Hugs from Casey and I talk soon .

HollyHeski profile image
HollyHeskiAdministrator

Usually before any surgery like this the surgeons have a weekly meeting to discuss 'your case's', so hopefully at your pre operation meeting he will give you a clearer picture of what they are going to do, as by then several opinions are in the mix.

Still all a bit scary for you, I think anything near the face always seems more emotional.

Your totally right you need the biopsies and need to know what it is, fear of the unknown leads to all sorts of anxieties.

Love your wording zippers, I'll keep that one in my mind, so apt for me too.

Hopefully, your fears of the worst don't materialise and you are given a good prognosis.

Thoughts are with you for your operation and speedy recovery.

jetjetjet profile image
jetjetjet in reply toHollyHeski

Thanks Holly

Yes i have been busted up quite a bit in my 5 years on this planet .fallen out of a car real young -hit by a car and dragged even younger maybe 6 years old on that one . broken - arms -legs - ankle -operations etc. - i don't have any tattoo's and people say J why not they identify you -WELL i have enough scars for that - that i am covered !! -It was a hurried thing and the to Doc's talked more and the scribe spoke very little . I did how ever get the APS issue in and also took control of the Bridging that will have to be done. seems i have done that bridging 6 or 7 times this year and now they at pain doc office will be doing not only C-spine but now L-spine area's with the MBB procedure's and I have to bridge for them also --SO i told them i would take care of that all I needed is what he wanted my INR at for the day of procedure and 1.2 was it .So as you said i will be talking to them again - I am a very high risk factor - 80% so it is a concern going into this.do they put you thru the same in UK ? these thins can differ from country to country .? I have to check with two other Doc's that are going to be doing these other procedures to see if I may be able to scedule two in one day ?? Good luck with that you may be thinking ha !!

hihannula profile image
hihannula

I hope all goes well and all the best for a speedy recovery once you've had your surgery. I would keep pressing on about your jaw too. Please keep us posted.🙂Holly

jetjetjet profile image
jetjetjet in reply tohihannula

Thanks Hihannula

I need to talk to them more . First off they came into the room Casey and I were in and left saying wrong room ??so this cut into time allotted for me !! They most likely had wrong files for me ? this is maybe why they din't come back . that was a 10 minute set back and the nurse doing my meds check that takes extra time also . BUT Holly hit it right on the head - i will be talking to them again .

GinaD profile image
GinaD

Oh my. Glad things are moving forward. Kaplach! (Klingon for Victory!)

jetjetjet profile image
jetjetjet in reply toGinaD

Thanks my friend onward !!

KellyInTexas profile image
KellyInTexasAdministrator in reply toGinaD

😂😆 ?! Are you two Klingon nerds?

Lol!

Well, Jim... keep Klingon.. Kling-in’ on! ( high five! ) Vulcan 🖖 style!!! Oh yeah!!!!

( and sorry I’m a traitor. I will simply say, if I’m true to my heart.., “ May the force be with you. “)

I’m gonna die here laughing at the nerdiness oozing out of my iPhone 📱...

jetjetjet profile image
jetjetjet in reply toKellyInTexas

That's my Buddy . But wouldn't i be jobbahut or what ever it was called - i have never seen any of those movie's - I am to scared .And i thought Klingons were what you made sure you didn't have when you left the restroom !! ?? Just to show you what i know .Hopes your iPhone stops oozing . could be messy .

I really need to know that this mass isn't going to be bad news- but it is growing fast- all i could get out of my Surgeons account in my file is his After visit Summary . do's and don'ts Etc. A lot of it generic letter . I will check it again later - i know the Fellow measured it , -the part that is protruding out of my face now . it is like an upside down Mushroom the base deep in cheek is much bigger than what shows thru skin . But like i said before 3 weeks ago you couldn't even see it - they had to feel it at PCP office -so it is growing fast and jut think i myself am shrinking !! go figure that out - Gravity a Wonderful thing - god knows i am vertically Challenged enough now . NOT SHORT MIND YOU :-) Will let you's know BBN

KellyInTexas profile image
KellyInTexasAdministrator in reply tojetjetjet

It’s very worrisome. You’ve got your “sticky” team with you here! Your stick blood gang through “ thick “ and thin.

Sooner it’s out, the better!

jetjetjet profile image
jetjetjet in reply toKellyInTexas

That's my thought s- - get it out and then Pathology . Thanks kel.

jetjetjet profile image
jetjetjet in reply toKellyInTexas

OK Guys here - i got Surgeons Appointment Details Gen: Pleasant ,well-appearing male in no acute distress.{ HMMM fooled him }

11/2 cm mobile Mass on right basal fold . photo's taken [ 2 ]

risks of excision . { I listed them before up above } I need to know if this is going to cause bad problems and the way it is growing and the bigger it allowed to get , the bigger the problem will become .

Grrrr !

MaryF profile image
MaryFAdministrator

HI, I hope 'Casey' is looking after you, and I also hope that things run smoothly for you with all this, wishing you all the best for the future and a swift recovery. MaryF

jetjetjet profile image
jetjetjet in reply toMaryF

Thanks my friend - it seems i am always into something doesn't it .-as they say " a rolling stone gathers no moss " and that's me no moss !! At first when Doc's came in the room and Casey was there on his blanket sitting on the chair -that is when they left again !! i thought and said to Casey - hope you din't scare them off big boy !! fr those of you who don't know Casey he is a chihuahua and my service Dog {that's why he is allowed every where i go any hospital } unless with some of my tests i have done the open radiation is used and he can't be in room when this happens - nobody in room but me .Casey weights in at a whopping 10 pounds !! We will certainly try to get this behind us quickly as possible .

C & J

TwoH profile image
TwoH

I really hope that all goes well for you with no hiccups and smooth sailing. For any of us, this would be disconcerting and concerning so I just pray that it's all easy peasy and you heal quickly!

jetjetjet profile image
jetjetjet in reply toTwoH

Thanks TwoH i hope it goes well also but with my luck ?? ha ha Thanks Again

GinaD profile image
GinaD

Let me know how things go. And you have my number I think. I'm off to Alaska to visit my daughter Sunday, but excepting flights and no cell areas, phone away.

jetjetjet profile image
jetjetjet in reply toGinaD

HI Buddy - MAKE ME JEALOUS !! --ONE thing i want t do before i die is Alaska -maybe when i win the Mega Bucks I had your # but the apartment went thru a flood {you may have read. 2ND time in a couple of years } But what didn't get soaked got shuffled around so if you still have my # call me and if not at home leave on machine - i will be out doing the paperwork dance - med lists -2 page medical problem list- i am sure you have done it . Take lots of pic's love them -so much to see there -where in Alaska are you going ?? WW -If i don't get chance to talk to you have a SUPERFABULOUS TIME :-) C&J

GinaD profile image
GinaD in reply tojetjetjet

Or visiting our daughter the professional kayak guide who just bought a house in Seward.

jetjetjet profile image
jetjetjet in reply toGinaD

Good for you guys - Have a safe and fantastic trip - pic's and does she have a web site for her business or where she works out of .Are you flying direct or stop overs ???? I am excited for you ha ha .

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