Coagucheck XS: Did they recall the... - Hughes Syndrome A...

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Coagucheck XS

SoulRebel-APS profile image
7 Replies

Did they recall the coagucheck machine or just some of the texts strips. Is the XS a good option for triple positive APS? Need wonder and don’t know if I asked before or not. My memory is shot. I’m will sigh back on latter and see what everyone says.

Thank you

Soul Rebel

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SoulRebel-APS profile image
SoulRebel-APS
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7 Replies
KellyInTexas profile image
KellyInTexasAdministrator

Just the strips. It depends on the patient... some patients are more “labile” ( unstable) with INR than others.

The LA test in particular tends to make it less reliable.

It’s the antibodies reacting the the reagents on the back of the test strips that is the problem.

The higher the INR, the less reliable they are.

I , for one , cannot use it.

SoulRebel-APS profile image
SoulRebel-APS in reply to KellyInTexas

Thank u Kelly

That is what I was thinking but I wanted to be sure. I am unstable so I guess it’s not the way to go for me. But I could use them to give me a general idea about where I’m at! Other then just going off symptoms.

Soul Rebel

KellyInTexas profile image
KellyInTexasAdministrator in reply to SoulRebel-APS

It probably will, I used it for a guide line to help me know what to eat greens wise for dinner. ( which direction was I trending.)

You would need to take it daily to every other day ( with parallel VP - venous puncture) with tight notes to see how reflective you are to vein value.

Then decide what you think.

When I was 4.0 INR it was accurate- ish for that purpose.

Lure2 profile image
Lure2

I totally agree with KellyInTexas! Try to take more vein-tests at a lab and try to be constant in what you eat (especially greens) drugs if possible etc.

Yllek profile image
Yllek

I use the coagucheck but as a guide. I’m LA positive and I can have huge variations at times and other times it’s almost identical to my vein draw. There’s no rhyme or reason to it either - believe me I’ve tried to figure out a pattern but there doesn’t appear to be one.

It’s always over the vein value though so I can use it knowing that if the machine says less than 3 then I should definitely use a clexane injection to bridge.

I have an excellent GP who gives me access to same day vein draws and results so if my machine is saying a very out of range value then I can go for a vein draw and have results within an hour or two. The system works well for me and I self manage my warfarin dose as well as self test but it isn’t for everybody.

SoulRebel-APS profile image
SoulRebel-APS in reply to Yllek

Yllek

I to am LA pos. I have triple positive and then a few more clotting issues thrown in, just for fun! My INR is not stable no matter what u do or don’t do. When she was using the coagucheck u used it as a loose guide along with symptoms. I to manage my own warfarin dosing. My PC said I know my body better than she does and as u know those of us who are unstable we have to change dosage quite often and Drs can’t talk to us every day. Looks like we are both in the same boat from what u have read most people are relatively stable. My dr gives me three prescription levels of warfarin so i can change it as necessary.

Thank you 😊

Soul Rebel

MaryF profile image
MaryFAdministrator

Hi, it is particular batches of strips, I believe, which were a problem. As Kelly says certain patients do not do so well with the machines, due to their particular Hughes Syndrome/APS profile, while others are better with it. I am glad you have had detailed responses, better than I could give, from a personal experience, as I have never used one. MaryF

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