Feeling so down

[rach1081985]

Feeling incredibly sad today and in lots of pain and discomfort.... Just want cry and give up... Full of stress at moment.... 1 thing after another

[HollyHeski Administrator]

Rachel, you are so brave and hit your health issues full on.

It's important now and then to accept a 'bad' day/moment. We get so tired from fighting all the time and occasionally it hits us and we feel like giving up.

Be kind to yourself and appreciate you cant be strong all the time, especially when we are tired. We cant solve all our problems at once, sometimes the phrase cant see wood from the trees applies.

Rest up, maybe a warm bath to help the pain, if it's more severe than normal, please seek urgent medical help?

Please don't suffer in silence xx

[rach1081985 in reply to HollyHeski]

Thank you so much xxx the pain seems getting worse... I have appointment coming up in September so do I waitx

[KellyInTexas Administrator in reply to rach1081985]

Is your INR staying in range? If not, do seek help sooner.

If pain is new or uncharacteristic for you, or INR is not stable, I agree with Holly. You should be seen much sooner, perhaps urgently.

[rach1081985 in reply to KellyInTexas]

Thank you Kelly... I'm not on warfrin so inr does nut apply to me. Think if gets worse I'll go hospital... As definitely not improving.. Thank you for advice x

[HollyHeski Administrator in reply to rach1081985]

As an ex ambulance technician we always advise if the pain is new, more prolonged than usual, or more intense then to please get medical advice.

Follow your instincts, if you feel you need to go to A & E then please do.

If your pain score is above 7 out of 10, then please call for an ambulance. Please don't suffer on your own, there are things the doctors can do to ease this.

Sending you a big hug x

[rach1081985 in reply to HollyHeski]

Thanks so much x

[MaryF Administrator in reply to rach1081985]

Sorry things are tough, pain can drag you down, and as mentioned above if you are worse with this pain, and a new symptom, please do seek medical help, I hope today is a better day for you. MaryF

[rach1081985 in reply to MaryF]

Thank you Mary.... I've just woke up and still feeling same..... Another day 2 plough through.... I'll phone NHS direct for advice xxx

[TwoH]

I’m so sorry you are having a hard day. We all get there from time to time and it can seem so overwhelming.

Please hear the advice of these wonderful ladies. I hope tomorrow is better for you

[rach1081985 in reply to TwoH]

Thanks so much x

[WendyWoo50]

This is a long reply but I felt I needed to offer you this advice.

Morning Rachael, the sun’s shining here and it’s lovely and warm. It’s Bank Holiday Weekend here in the UK (meaning the workers have Monday off too) so lots of people head out for a fun day.

But: I sit alone with pain everywhere. One day this fact alone would make me feel depressed another day I think ‘at least there’s better TV this weekend!’

What I’m saying is that the nature of our condition affects our mind. My specialist told me last week on my visit :

“You know APS causes depression too!” And it sort of made it easier to be reminded of that.

Some days I’ve felt like counting out pills and ending my suffering but then another day happiness fills me. I’m certainly not going to roll out the clichés:

“There are people worse off than you”

“ Feeling sorry for yourself won’t help you!”

You know that as do I, already!!!

Or even the worst (in my opinion)

“Pull yourself together!”

Because we can’t!

My advice is to go with how you feel. It won’t last forever. We know that we experience peaks and troughs. This is a trough for you but soon you will have the strength to climb again.

When you have a peak, prepare yourself an emergency box 📦 (see my previous posts) that way the things you need to help your mind and body, will be on hand. Keep a ready meal(s) in the freezer, so you don’t pressure yourself to cook but have healthy meals ready. Put in it a easy read up beat book. A rom com or comedy film. A small mindfulness colouring book, pencils and sharpener. (I really find it helps. I have a book of postcard sized flowers to colour, which means I colour them and if I want I can add a note and send them to a friend it really helps as it takes the focus off your mood and pain for a while). A soft packet of tissues (it’s ok to cry it allows frustration to leave you). A list of those who you can phone for a chat, support and upliftment (we sometimes forget to call on others) paper & pen to write a note for others to understand how u feel. Another thing that helps many is to write a letter to the ‘poorly you’ on a really good day. Give yourself encouragement and positivity. Anything else that may help you.

The main thing to remember is that:

‘This won’t last forever!’

Maybe add that statement to your box.

Because it is true how you feel now will go and you will feel happiness again!!!!

I use Meditation to help. Led meditation is best when it’s a difficult day. Meditation is non-denominational and it works to relax your body, brain and then mind.

I have one i recorded myself, I can E-mail you if you wish. (Message me your address).

Your mind needs a little down time it needs a break. Soon believe me you will be back in your own mind. How do I know? Because it happens to me often. Today I’m smiling and enjoying the sun 🌞 so I’ll make the most of it.

I sincerely understand and send you love and imagine you surrounded by bright white light energy. 💖

[rach1081985 in reply to WendyWoo50]

Thank you very much that was so helpful and kind of you....i understand what you are saying im in uk aswwl enjoying sunshine... My depression is through past abuse with anxiety and ptsd... I know I'll be OK I have many reasons to smile.... Have a lovely day... I'll inbox you my email.. Thanks so much again xx

[rach1081985]

Thank you for all your kind words and support.. I'm feeling a bit better now and pain not so bad.... I'm gonna enjoy sun make a nice roast and enjoy my girls.... Xxx

[Lure2 in reply to rach1081985]

I wonder; do you only have APS or also other autoimmun illnesses and do you have a Specialist of autoimmun illnesses who works with people like us on a daily basis?

Have yo already been on Warfarin as that drug is usually the best for us with primary APS and also perhaps Lupus Anticoagulant in our blood. I wish you could get rid of your pain that is why I ask.

[rach1081985]

Yes as far as I'm aware I only have aps and I do not take warfrin I did in past but did not work fir me and yes I do have a specialist in aps... Thank you very much... I think I know what's wrong

[jetjetjet]

My comp. not working - think from what i can see you are down - Hugs and keep up if you can .. nothing but the best Rach. casey and I