Worrier

[morro]

Reaching out

Iam relaxing and out of blues start to feel funny

When i stand or walk feel shakey

Have palpitations for no reason

[MaryF Administrator]

Hi, Do you have a diagnosis for Hughes Syndrome/APS? As we are not a general medical forum. However if you feel ill please telephone your GP, or 111 MaryF

[teresahunter]

I often feel the same and it isfrightening. It happens especially if my blood is thick. My one is tested weekly

[Lure2]

Hi there on Trinidad or Tobago (?)

Hope you have got a Specialist of autoimmun illnesses IF you have our sticky blood. Also important to get the best anticoagulation-drug and if it is Warfarin you use to keep it steady all the time and rather high (as the Specialist would understand if he is well- informed about APS that is).

We have snow here in Stockholm for Christmas but I guess you do not have that on Tobago.

[mariamoo1]

Yes I agree with Teresa hunter, I know when my blood is too thick and I also feel this way also, but feel marvelous when it’s too thin! Despite the doctors readings, I just know and can feel it. I couldn’t tolerate warfarin, and I am now on apixaban. So INR not tested. But I can feel it, my blood still shifting from too thick , and yes it’s frightening and I feel terrible ,then it goes all the way down , too thin. And then horrendous nose bleeds or bruises!

[Lure2 in reply to mariamoo1]

I have sent you a message!