Waking throughout the night with pins and needles or numb limbs

[zoedavies1]

. . Is this a symptom of APS? Any thoughts/ experiences much appreciated x

[HollyHeski Administrator]

My pins & needles, numb arms are due to neurogenic-arterial thoracic outlet syndrome, which I feel originated from my APS & cervical narrowing.

I think mine has built up over many years.

Is this a new symptom for you? Any new or more severe or prolonged symptom should be investigated by your doctor.

[Hidden in reply to HollyHeski]

I wondered if the condition is related to hughes? I noticed another post on this problem as I do.

[Lure2]

I wonder if you have got a Specialist of autoimmun illnesses first of all and what he says about it?

Sounds like a symptom of your APS when you are not anticoagtulated enough for your too thick blood.

At the beginning when I was not enough anticoagulated at all they told me I had carpaltunnelsyndrom and wanted to operate. Funny but the symptoms went away. Can not remember why. I do not think I had started Warfarin that time though. Perhaps it was not carpaltunnelsyndrom. Anyway I am glad I was not operated.

Kerstin in Stockholm

[MaryF Administrator]

HI, if this is something your GP or main consultant does not know about, I think you should tell them. I will add that my pins and needles disappeared after a) sorting out my Thyroid which appeared to improve my carpel tunnel problems, and also addressing my B12 levels. I do also take magnesium and bathe in Epsom Salts, but always do check with your GP before adding in new supplements. Also it is best to get tested for B12 deficiency before commencing any supplement. MaryF

[ELlieRL]

Prior to my APS diagnosis, which only occurred following a significant stroke that left me in a wheelchair for six months, and three years later, my left arm is still non-functional. I did experience pins and needles, but not waking me up at night.

[Leenalina1]

I have also had this for couple of days now. Tingling and numbness in hands and legs and feet. Moving from limb to limb, night and day. A week ago I was in colonoscopy and gastroscopy. For it I had to lower my INR to 2-3. Still it is not high enough and somehow I connect these symptoms to low INR. I am planning to phone to doctor tomorrow.

[Lure2 in reply to Leenalina1]

Hi Leenalina1,

Best wishes from Stockholm

[Lure2 in reply to Lure2]

Hi Leenalina1,

Something happened with my answer?!

I had written; "It probably is. Get your INR up!"

Kerstin

[Leenalina1 in reply to Lure2]

Yes I should get it higher.

[zoedavies1 in reply to Lure2]

Hi - I don’t have an INR - I’m not on warfarin yet - can you get your blood thickness checked without being on Warfarin?

[Lure2 in reply to zoedavies1]

Without Warfarin your blood usually is 1,1 or 1.2 in INR.

Kerstin

[Leenalina1 in reply to Lure2]

Thank you! You too!

[pinkyandperky]

Hi I am waking with this most nights with really fat feeling fingers and numb hands have been having physio for it, but it does not make a difference. taking aspirin does! i am not diagnosed with aps. but it explains a lot. hope your specialist gives you some answers. I am asking my doctor if I can be referred to an APs specialist on Thursday

[Hidden]

In my case, Prof H suggested LMH, which did not go down very well due to the risks. My previous paperwork revealed that my INR was 0.7.

[hihannula]

I've been on plaquinal for the APS and Lupus for many years and I'm convinced my pins, needles, numbness etc is a side affect of plaquinal. I looked it up and sure enough,there it was,as a cause of perhiperal neuropathy. Hope that helps. Holly