Hi all I’m after some advice please. Here’s my story..
I am now 45 years old and basically I had 3 normal pregnancies/normal births between 1995-2001. In 2013 we decided to try for another baby from 2013-2015 I had 3 miscarriages. I was referred in July 2016 to a Obstetrician & Gynaecologist and then a Haematologist - after numerous tests I was told I had IgG anticardiolipin antibodies at about 8pglu and IgM anticardiolipin antibodies in the 30s and that I also was positive for a lupus anticoagulant - firstly can anybody clarify what this actually means??
I was told that I basically had Antiphospholipid Syndrome and told this would be the reason for my miscarriages, I was told to take low dose Aspirin and in the future if I did want to continue trying for a baby I would have to have start on heparin as soon as confirmation of pregnancy, but then there was no guarantee that the pregnancy would end successfully. We decided this wasn’t for us and decided to leave it and call it a day and that perhaps we should just be grateful for what we had.
During the last 18 months I have developed several different ailments/symptoms that resemble those of APS and feel my health is not as good as it should be and I am convinced it’s down to this. I’ve been back to my GP a few times with regard to certain issues and they fob me off and tell me that Antiphospholipid Syndrome is only prevalent during pregnancy. After my GP telling me I was wasting NHS time!! she finally agreed to refer me to a clinical Haematologist in May this year - I had 1 blood test and was told that it was negative for lupus anticoagulant and that the anticardiolipin antibodies are persistently positive at 47GPLU and 17MPLU and they would suggest an obstetric Antiphospholipid Syndrome and that basically I would only experience problems if pregnant - however I hadn’t been pregnant for almost 12 months after initially being tested and diagonised!! So that surely contradicts what they are saying?
Can you have Antiphospholipid Syndrome that’s only a problem when your pregnant and not generally - and can it just go away?
I would really appreciate anybody’s views or knowledge on this as I am at my wits end with it.
Thank you xx