anyone near Indiana: new to all of this... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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anyone near Indiana

Molliesmom profile image
7 Replies

new to all of this, are there any other APs patients, maybe in or near indiana?

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Molliesmom profile image
Molliesmom
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7 Replies
Wittycjt profile image
Wittycjt

Welcome, tell us about being diagnosed. Im thinking others will jump in shortly. People come on from all different time zones....its 9:15 pm in Delaware

ndstephens49 profile image
ndstephens49

Hi! I am in southern West Virginia about 4 hours from Bloomington, Indiana. My daughter is finishing school and working in Bloomington.

I was diagnosed in Cincinnati, Ohio by Dr Charles Glueck at Jewish Hospital but he is now retired.

It took many years (8) for a partial diagnosis and I was then put on Coumadin.

I have many other health issues that have made treatment complicated.

I have difficulty in finding a doctor who can diagnose and properly treat thrombophilia (as APS).

I wish you good luck in that area.

You will learn a great deal from this site.

Nancy in West Virginia

GinaD profile image
GinaD

I am also in Wedt Virginia, an hour further east from you than Nancy. I too was diagnosed in Cinn Ohio, though by Dr Winkelman whose practice is actually across the,Ohio in Newport Ky.

tobiasm profile image
tobiasm

I am in Indianapolis. I was very fortunate and was diagnosed by doctors at IU Health Methodist hospital within a few days of splenic and renal infarctions.

Wittycjt profile image
Wittycjt

How are things

Molliesmom profile image
Molliesmom in reply to Wittycjt

doing well, how about you? still same ole, had to get some meds for some belly problems...found out that acid reflux is a side effect of the meds...yippee lol

Wittycjt profile image
Wittycjt

Plaquinil/hydroxychloroquine perhaps...

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