I am 19 and in May of this year suffered what’s believed to be a silent stroke. I then collapsed with slurred speech and the inability to move my right side in June, (went to A+E who thought it was a TIA but discharged me because I was under 45) then collapsed again beginning and mid July, (on 11th July losing vision in left eye and passing out)
Saw a neurologist who diagnosed me with a hypothalamic strole caused by a clot.
Since 15 I’ve suffered with daily headache, dizziness, blurred vision, memory and concentration issues, muscle weakness, increase in lactic acid and prolonged muscle recovery, Raymond like symptoms in my hands, neuropathy in my ankle and unexplained joint pain.
A friend I met through a stroke charity suggested APS due to my symptoms and I’m seeing a haematologist on Monday. I have a prolonged PTT time and apparently several small indicators I have a clogging issue, but I went to have the APS tests done which came back as negative. We are not sure if they were done correctly as I know they have to be tested within about an hour, but has anyone else had issues getting a positive result?
My stroke and TIAs were all clots and have no other explaination.
St Thonas’s when I spoke to them were keen to see me after the haematologist has run more tests, but I just wondered if I’m the only one been in this situation.
Many thanks in advance