Beta2glycoproteins antibody results

[NanaPam]

14 years ago when I was first diagnosed with APS, I was told I was positive for the A antibody. A New York doctor who specialized in APS told me positive A was the rarest form of the disease. Does anyone else have type A only? I also had several miscarriages when I was younger. They keep my INR between 3.5 and 4.0. I also have stage 3 kidney failure which is edging into stage 4. And I have severe RA, Sjrogrens syndrome, HBP, and fibromyalgia, thyroid disease, parathyroid disease and low Vitamin D levels. It all is overwhelming! Especially now that I am a widow. My husband passed away unexpectedly when he was only 51. So I no longer have my support system.

[NanaPam]

Thank you

[Lure2]

Hi NanaPam,

I see you are from United States. I have triple-positive antibodies with high titres since several years. I am 74 years old and as I looked at the lab-answers I can see I have A-positivity like G and M.

I do not care so much about my antibodies as the important thing, as APsnotFab says also, is to have a Specialist of autoimmun illnesses who KNOWS these illnesses very well. I see from your question that you have got a lot of them and they often go together like APS, Thyroidea and Sjögrens.

Also to be well anticoagulated at a steady INR.

You say you have "HBP" which I guess means high blood pressure. That is not good. You must try to get that down! That should not be impossible.

HBP can be a symptom of APS and can give Pulmonell Hypertension and sometimes leaking heartvalves.

If you do not have a Specialist, of the sort I talk of here, let us know please and we can perhaps help you to find one.

Best wishes from Stockholm

[nmousdic]

Google Dr Brook Goldner, and follow her recommendations. She cured herself of Systemic Lupus and APS

[Wittycjt in reply to nmousdic]

I have opted to do her drinks since switching to lovenox

[Yllek in reply to nmousdic]

There is no cure!

[nmousdic]

One can reverse lots of symptoms with diet. It’s a trial and error situation.

[snorkle272 in reply to nmousdic]

That sounds like good news. Are there any studies to support that?

[MaryF Administrator]

Hi and welcome, sorry things are a bit tricky for you, you have landed on the right forum, you are not the only one feeling the way you do. Do you have a decent specialist looking after you now, who fully understands the condition? Also have you had a look through our charity website? ghic.world/

MaryF