Beta2glycoproteins antibody results - Hughes Syndrome -...

Hughes Syndrome - APS Support
9,461 members9,530 posts

Beta2glycoproteins antibody results

NanaPam
NanaPam

14 years ago when I was first diagnosed with APS, I was told I was positive for the A antibody. A New York doctor who specialized in APS told me positive A was the rarest form of the disease. Does anyone else have type A only? I also had several miscarriages when I was younger. They keep my INR between 3.5 and 4.0. I also have stage 3 kidney failure which is edging into stage 4. And I have severe RA, Sjrogrens syndrome, HBP, and fibromyalgia, thyroid disease, parathyroid disease and low Vitamin D levels. It all is overwhelming! Especially now that I am a widow. My husband passed away unexpectedly when he was only 51. So I no longer have my support system.

9 Replies
oldestnewest
HiddenThis reply has been deleted
NanaPam
NanaPam
in reply to Hidden

Thank you

Hi NanaPam,

I see you are from United States. I have triple-positive antibodies with high titres since several years. I am 74 years old and as I looked at the lab-answers I can see I have A-positivity like G and M.

I do not care so much about my antibodies as the important thing, as APsnotFab says also, is to have a Specialist of autoimmun illnesses who KNOWS these illnesses very well. I see from your question that you have got a lot of them and they often go together like APS, Thyroidea and Sjögrens.

Also to be well anticoagulated at a steady INR.

You say you have "HBP" which I guess means high blood pressure. That is not good. You must try to get that down! That should not be impossible.

HBP can be a symptom of APS and can give Pulmonell Hypertension and sometimes leaking heartvalves.

If you do not have a Specialist, of the sort I talk of here, let us know please and we can perhaps help you to find one.

Best wishes from Stockholm

Google Dr Brook Goldner, and follow her recommendations. She cured herself of Systemic Lupus and APS

Wittycjt
Wittycjt
in reply to nmousdic

I have opted to do her drinks since switching to lovenox

Yllek
Yllek
in reply to nmousdic

There is no cure!

One can reverse lots of symptoms with diet. It’s a trial and error situation.

snorkle272
snorkle272
in reply to nmousdic

That sounds like good news. Are there any studies to support that?

MaryF
MaryFAdministrator

Hi and welcome, sorry things are a bit tricky for you, you have landed on the right forum, you are not the only one feeling the way you do. Do you have a decent specialist looking after you now, who fully understands the condition? Also have you had a look through our charity website? ghic.world/

MaryF

You may also like...