Superficial vein blood clot

[edgewater100]

Last night went to the ER due to a large bump on the back of my knee, turned to out be a superficial vein blood clot, my INR was3.7, Doctor at ER acted like no big deal, should I be worried?

[Bright2018]

You're with Our NHS which is the best healthcare provider in The World. I would not worry, the NHS staff are the best in the business.

God Bless You.

[KellyInTexas Administrator]

You are in the USA, correct?

I develop a lot of superficial Clots, as well as deep vein thrombosis.

I have a vascular surgeon , and his name is Joseph Vinas. He is with Hill Country memorial Hospital - in both Kerrville and Fredericksburg Texas. ( neighboring communities- he services both communities. ) you can look him up to feel comfortable with his qualifications. He’s in his early 70’s now and has an astounding breadth and depth of experience.

Here is what he told me:

1. A clot is a clot when it comes to how your blood is behaving. So for an APS patient- I want to keep in mind the “ quality “ / stickiness of your blood when thinking of terms of “ is it a superficial or a DVT clot.

2. Sometimes a superficial clot can be dangerous for any patient. It depends on where it is. Think of superficial veins as feeder roads onto the interstate. ( I think you are in the USA?) Clots build up- like box cars on a train- one platelet after another joining on like one box car after another hooking on to a train. If that clot happens to be at a junction where it “feeds onto a deep vein” like a feeder road joining on to an interstate, then it can bump off into and dislodge into a deep vein and the emnolise. A good example is at the popliteal junction.

He drew this out for me on a piece of paper so I have a very clear image of it.

Something is really going on with you... see, point proven to whatever doctor tried to tell you you were displaying “ psychiatric “ symptoms. I’m ( in a way because you are safe for now) glad this has happened. You need a higher INR, and a proper hematologist, Rheumatoligist- a shake up/ wake up call to your team, or a new team!

[edgewater100 in reply to KellyInTexas]

Thank you !! Yes I live in Missouri, my Neurologist just passed me to another Auto immune Neurologist because she couldn’t help me so I think you are right it is time to shake it up!!

[Tofino5 in reply to edgewater100]

I’m in the US too. My last superficial clot was handled the same way - don’t worry, not a big deal, no danger. The whole time I was on warfarin no one was willing to let me bump up the target INR, although my hemotologist, who handled my APS at the time, said she wouldn’t worry about being too low, but when it was over 7.0 she was also not concerned. Go figure.

[edgewater100 in reply to KellyInTexas]

Did he change you off warafin, my hemo is talking in that direction, I tried Lovenox I still had Neuro issues!

[jetjetjet]

Superficial -- shallow vein clotting -they haven't been to overly concerned UNLESS i was having lots of flares and or low INR . at the same time -- varicose veins have been used a couple of times as a comparison .

[MaryF Administrator]

I would be making sure that your main specialist is keeping an eye on things, and you an eye on them, how is your INR? Also maybe they may wish to re discuss your medication at the moment. MaryF

[Wittycjt]

How are things now?