Following further DVTs in my left leg in 2012, I was eventually diagnosed with APS and have been on Warfarin ever since with an INR target of 3.5 (range 3.0 to 4.0) which is well manged by a combination of self testing at home and periodic testing at our local hospital in Carmarthen (UK).
Despite wearing support stockings, exercise, elevating when at rest, daily moisturising etc my left leg is deteriorating and I was recently referred to a vascular surgeon and had several scans the results of which were not good. There is extensive damage to the veins, valves and I have venous reflux resulting in blood "pooling" in the lower leg veins causing bad circulation, discolouration (hyperpigmentation), pain/tenderness in my calf and periodic infections.
Surgery is not an option due the extent of damage to the veins and my right leg whilst not as bad is also showing similar signs. I have always been an active guy but now find I have to walk with a stick and cannot walk anywhere near the distances I could previously, Similarly, driving is proving troublesome and changing to an automatic is on the cards.
With surgery not being an option and wishing to stay an active 60 year old I would welcome any advice from anyone who has similar problems and how they manage and any medication that may be of use.