Hydroxychloroquine: New report... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,482 members10,661 posts

Hydroxychloroquine

HollyHeski profile image
HollyHeskiAdministrator
11 Replies

New report regarding hydroxychloroquine. I have been on this for over 10 years, originally prescribed for sjrogrens but now learning also good for APS & Lupus patients.

healthunlocked.com/api/redi...

Written by
HollyHeski profile image
HollyHeski
Administrator
To view profiles and participate in discussions please or .
Read more about...
11 Replies
MaryF profile image
MaryFAdministrator

I am hearing that people with Hughes Syndrome/APS are prescribed it more regularly now, not just for the fatigue issues, but also as it does seem to help with clotting issues, although more studies will be done, I have heard of this being described as anecdotally, with regard to thinning the blood, from a medical perspective. MaryF

daisyd profile image
daisyd

It is a life saver drug for me, my balance has improved and I don't fall over like I used to, or bump into things it's brilliant

Lure2 profile image
Lure2

Hi Holly,

Have I misunderstood that Hydroxycloroquine is another name for Plaquenil or .......?

Kerstin

Yllek profile image
Yllek in reply toLure2

Yes they are the same thing Kerstin. I say I take hydroxychloroquine and my haematologist calls it plaquenil.

Kelly x

Kerlampert profile image
Kerlampert in reply toLure2

Yes, its the generic for Plaquenil.

Kerlampert profile image
Kerlampert

It shows effects on TF...tissue factor. So, I will stay on it long enough to measure any differences in myself...its now been 5 months since I started.

Kerstin from Hawaii

Lure2 profile image
Lure2 in reply toKerlampert

Hallo Kerstin!

Which is the best one?

Kerstin in Stockholm

HollyHeski profile image
HollyHeskiAdministrator in reply toLure2

Plaquenil/hydroxychloroquine are the same drug, the best brand for us is from Zentiva. There are other suppliers but some people report nasty side effects.

Lure2 profile image
Lure2 in reply toHollyHeski

Thanks Kelly! That is what I have neard before but forgotten. Zentiva is the name.

Kerstin

Kerlampert profile image
Kerlampert in reply toLure2

I don't know, but I will look into it over the next few months.

Kerstin

Wittycjt profile image
Wittycjt

Hmm

Not what you're looking for?

You may also like...

Hydroxychloroquine and Primary APS

Hi All, I am new to this wonderful group. Diagnosed in January with triple positive APS after a...
Px123 profile image

Hydroxychloroquine? Manufacturerx

Hi, I’ve been on the above (however badly I spelled it!) for coming up 4 years I think at 400mg a...
lloydyuk profile image

Hydroxychloroquine and tinnitus

Has anyone else developed tinnitus while on hydroxychloroquine? I have been taken of my...
kaz41 profile image

differant brands of hydroxychloroquine

I have been on Hydroxychloroquine for 6 years i have lupus sjrogens hughes syndrome and...
wales profile image

Been on hydroxychloroquine 3yrs

I have been taking hydroxychloroquine for 3 years now. It started about 6 months ago Me having...
catlove123 profile image

Moderation team

See all
HollyHeski profile image
HollyHeskiAdministrator
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.