Hi, I am confused and wanted to see if anyone who is triple positive without a clot is on blood thinners. My short story is I had double vision/VI Nerve Palsy and was triple positive. 2 weeks later I felt acutely sick with some neurological symptoms and horrible leg pain etc. But, still no confirmed clot. Since I was high triple positive my Hematologist In Los Angeles put me on Warafin. I feel better although still have some issues but much better since being on Warfarin. Some doctors thought I might have had an infection but the follow up at 10 weeks show I am still high. My newest tests are 53 Anti-Glycoprotein and 63 Anti-Cariolipin (up from 20 2 weeks before). My LA will likely not be accurate since I am on blood thinners. I have seen Dr. Erkan at Hospital For Special Surgery (he dedicates all his time to APS research) and waiting to speak to him after the test results. One hematologist in NJ thinks I need to see a neurologist to make 100 percent sure I didn't have TIA's etc. Usually if you don't have a thrombosis they don't put you on preventative Warfarin but I read an interesting research article that said if you are triple positive without thrombosis you have a 37-50 percent chance of having a clot over 10 years. Don't like those numbers.
Any thoughts appreciated.