Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for January 2017

When will the headache go?

So it's day 22 of headache from hell!!! 😰 Tuesday INR went from 2.6 to 3.5. (The top of my set range) I told dr I was not going to reduce my dose and he wrote...

So it's day 22 of headache from hell!!! 😰 Tuesday INR went from 2.6 to 3.5. (Th...

WendyWoo50

•7 years ago

12 Replies

One year one

this time last year I was diagnosed with aps/ Hughes 4 PE in my lungs and DzvT in right leg. A week later contracted chest infection which much later I found...

this time last year I was diagnosed with aps/ Hughes 4 PE in my lungs and DzvT ...

dawnzy

•7 years ago

14 Replies

Blood donations

is it possible to pass aps on to other people through a blood donation I know this may seem naive but its a though that has processed in my head.

is it possible to pass aps on to other people through a blood donation I know th...

dawnzy

•7 years ago

9 Replies

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Compression tights/leggings for running?

Can anyone recommend a brand you like? I'm new to running (I have doc permission). I've signed up to coach an elementary girls' running group. I'm more of a...

Can anyone recommend a brand you like? I'm new to running (I have doc permission...

Holley

•7 years ago

7 Replies

APS and heart ablation

Hi, I was diagnosed with APS three years ago. On plaquenil and aspirin. Today I was told I should undergo an ablation for SVT. Terrified! Has anyone had any...

Hi, I was diagnosed with APS three years ago. On plaquenil and aspirin. Today I ...

danapu

•7 years ago

7 Replies

Numbness and pain in foot and numbness up partial leg.

I had total knee revision and the day after I noticed I was numb in most of my foot and soon after started having severe neuropathy pain in my arch of my foot....

I had total knee revision and the day after I noticed I was numb in most of my f...

Hidden

•7 years ago

4 Replies

Medical alert bracelet

Hi am confused as to whether I should be wearing a medical alert bracelet. I have lupus and aps, on several medications inc steroids, clopidogrel and...

Hi am confused as to whether I should be wearing a medical alert bracelet. I hav...

Sara_A

•7 years ago

12 Replies

Positive Test Results

I'm confused about the test results mentioned on here. I know there are three tests. I know and totally believe in deep-negative. Prof. Hughes talks about...

I'm confused about the test results mentioned on here. I know there are three te...

WendyWoo50

•7 years ago

12 Replies

New Year New Pains Why???

Hi I hope everyone has a HEALTHY NEW YEAR! I get these upper body spasms in my arms shoulders chest(not my heart) it's almost like labor pains! It builds and...

Hi I hope everyone has a HEALTHY NEW YEAR! I get these upper body spasms in my ...

Debbweb01

•7 years ago

16 Replies

What are Micro Clots? Are they dangerous?

I think I suffer micro clots in my brain. Horrific pain in a part of my head for minutes or up to an hour. That leaves me jaded and delicate with a worse...

I think I suffer micro clots in my brain. Horrific pain in a part of my head fo...

WendyWoo50

•7 years ago

42 Replies

APS Advice

Hi. I tested positive for Hughes Syndrome 26 yrs ago. Due to inflammation & bleeding from aspirin & then clopidogrel it was necessary to stop them. My...

Hi. I tested positive for Hughes Syndrome 26 yrs ago. Due to inflammation & blee...

coralinn46

•7 years ago

8 Replies

I.b.s/colonoscopy

Ibs? 17 years changes in symptoms past 2 years every I eat causes pain and fibre makes it worse pains are unbearable and lately left /right side pain and...

Ibs? 17 years changes in symptoms past 2 years every I eat causes pain and fibre...

katanx

•7 years ago

4 Replies

Still looking for specialist

Im just checking in thought I would ask again if anybody know of an APS specialists in New Mexico. Thank u for your time!

Im just checking in thought I would ask again if anybody know of an APS speciali...

SoulRebel-APS

•7 years ago

4 Replies

2 questions in 1 A) Is the erratic nature of my INR due to APS or azathioprine? B) Is anyone else taking huge doses of warfarin eg. 20mg/day

Is the erratic INR due to APS or azathioprine? Despite eating, drinking and on the same meds every day my INR is very erratic. I was on Methatrexate for...

Is the erratic INR due to APS or azathioprine? Despite eating, drinking and on t...

WendyWoo50

•7 years ago

13 Replies

Alert Tattoo

Hi there! It's been 7 years I was d-x with Hughes Syndrome. I am planning on having a tattoo done as an alert sign with a writing that I am on blood thinner....

Hi there! It's been 7 years I was d-x with Hughes Syndrome. I am planning on hav...

badegirl

•7 years ago

10 Replies

Prof Hunt consultation price ?

Any advice on cheapest way visiting ????

fitzyc

•7 years ago

2 Replies

PM

Mary, can u plz explain to me how to private message someone on this site? It would be most appreciated. Thank u

Mary, can u plz explain to me how to private message someone on this site? It wo...

SoulRebel-APS

•7 years ago

1 Reply

Anyeurisms and APS? Are they Linked?

Aneurisms with APS? If the outer membrane of vascular ( any size- capillary, arterial, ...) come " under attack", then is it plausible these " highways and...

Aneurisms with APS? If the outer membrane of vascular ( any size- capillary, art...

KellyInTexas

Administrator•7 years ago

16 Replies

Hello everyone

Hello,my name is Becky,I have APS/Hughes Syndrome,It was discovered in 2010,I have a DVT in my left leg,I had a Tia in 2013,I will be on warfarin forever,I...

Hello,my name is Becky,I have APS/Hughes Syndrome,It was discovered in 2010,I ha...

beckyr24

•7 years ago

33 Replies

USB Medic Altert Bracelet

I was wondering if anyone besides me knows about and uses a USB Medic Alert Bracelet. Its really cool u plug it into your computer and it doen loads a program....

I was wondering if anyone besides me knows about and uses a USB Medic Alert Brac...

SoulRebel-APS

•7 years ago

4 Replies

Welcoming back Kerstin from Stockholm as an Administrator

We are pleased to tell you that kerstin is back as an Administrator, she never really went away, and it is great to stick a badge back on her name! Welcome...

We are pleased to tell you that kerstin is back as an Administrator, she never r...

MaryF

Administrator•7 years ago

18 Replies

Warfrin

Hi does anybody take anything tht replaces warfrin? I live in Australia an have been on these ugly meds this is my 17th year. My levels are always up an...

Hi does anybody take anything tht replaces warfrin? I live in Australia an hav...

Tee01

•7 years ago

15 Replies

Memory issues!!

Hi I have lupus and aps and at the moment am having real problems with my memory. I e recently been changed from aspirin to clopidogrel to see if it helps....

Hi I have lupus and aps and at the moment am having real problems with my memory...

Sara_A

•7 years ago

11 Replies

Xeralto Causing Seizures With APS?

Hello. I happened upon this site because my 19 year old was diagnosed with APS and a genetic blood mutation when he was 16. It's been such a relief just to...

Hello. I happened upon this site because my 19 year old was diagnosed with APS a...

DebbyL

•7 years ago

20 Replies

APS and cluster headache/migraine

Hi, Have any of you any experience with aps and cluster headache? I've had it for about a year now and was diagnosed with aps about 6 months ago, after about...

Hi, Have any of you any experience with aps and cluster headache? I've had it f...

chlowy

•7 years ago

16 Replies

Plaquenil

Is this the plaquenil you are talking about

silemoran

•7 years ago

2 Replies

Is aspirin enough?

Hi, I was diagnosed with APS this past summer and told to take baby aspirin once a day. I was finally diagnosed after experiencing 2 miscarriages (first one at...

Hi, I was diagnosed with APS this past summer and told to take baby aspirin once...

NE27

•7 years ago

19 Replies

Low INR & Symptoms

My INR has dropped to 2.3 and I feel dreadful. In fact I have done for some months. In September I was transferred from hospital monitoring to monitoring at my...

My INR has dropped to 2.3 and I feel dreadful. In fact I have done for some mont...

WendyWoo50

•7 years ago

30 Replies

Professor Graham Hughes' Monthly Blog December 2016

BLOG – December 2016 “Treatment Choices, Treatment Failures” I am writing this blog on the last day of the year – an eventful year both in politics and, for...

BLOG – December 2016 “Treatment Choices, Treatment Failures” I am writing this...

MaryF

Administrator•7 years ago

16 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2017

When will the headache go?

One year one

Blood donations

Compression tights/leggings for running?

APS and heart ablation

Numbness and pain in foot and numbness up partial leg.

Medical alert bracelet

Positive Test Results

New Year New Pains Why???

What are Micro Clots? Are they dangerous?

APS Advice

I.b.s/colonoscopy

Still looking for specialist

2 questions in 1 A) Is the erratic nature of my INR due to APS or azathioprine? B) Is anyone else taking huge doses of warfarin eg. 20mg/day

More blood pressure problems

Alert Tattoo

Prof Hunt consultation price ?

PM

Anyeurisms and APS? Are they Linked?

Hello everyone

USB Medic Altert Bracelet

Welcoming back Kerstin from Stockholm as an Administrator

Warfrin

Memory issues!!

Xeralto Causing Seizures With APS?

APS and cluster headache/migraine

Plaquenil

Is aspirin enough?

Low INR & Symptoms

Professor Graham Hughes' Monthly Blog December 2016

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