Hi. I tested positive for Hughes Syndrome 26 yrs ago. Due to inflammation & bleeding from aspirin & then clopidogrel it was necessary to stop them. My consultant hasn't checked my bloods to see where my levels are at, for at least two years or more, as far as i am aware. I get the impression that because my APS levels are on the low side, or were some years ago, the Rheumy is of the opinion that I am not at a high risk, Ive never had a clot, despite having migraine 4-5 days a week, numbness/pins & needles down one side of my face, sometimes down my arm & leg, difficulty with wording, sensitivity to light, fast moving objects i.e. TV, passenger in a car when driving fast, lightheadness, chest pain, pain at the back of my eyes, sometimes feeling light headless/dizzness. I also have purple lacy like rash, although something very faint after showering, more evident after a bath or if I sit in the sun or stand in the cold for any length of time. Is it common practice to have to wait to develop a DVT or a mini TIA if you have problems with medication and gastric problems and/or with low APS levels?
Many thanks for your advice.