Hey everyone. I'm at wits end over here. My doctor never got back to me about switching my Lisinopril to another medicine. I have been waiting for a week and no call back from the doctor. I might be switching GP's soon but I am such a complicated case. It's going to be a lot of work trying to explain all of this to a new GP in 15 minutes. The healthcare over here sucks and they're about to start cutting people off again as my state is going bankrupt. I'm preparing to go without medical coverage again and will have to rely on family for meds and maybe see a doc every few months for cash price.
I went off the Lisinopril for a while and all was good until about three days ago. The high blood pressure and fast heart rate returned with a vengeance. I had a heart rate of 100 while sitting for two days straight. I got up to grate some cheese by hand with a cheese grater and my pulse went to 130 BPM from just that. I wanted to test how bad things were so I decided to vacuum two rooms really fast, and I moved some heavy furniture. My pulse went up to 140 BPM with a BP of 131/111. I then later that night had a pulse of 188 BPM from climbing the stairs. It scared me enough that I almost called 911. I took 10 mgs of Lisinopril and it was like taking a sugar pill. My BP was still 150/110, but as the night progressed on, it got better. It went down to 115/85 which is much better than what it was. Yesterday it only hit 140/100 once and it has been behaving today since I took another 10 mgs of Lisinopril. It was 150/100 when I first got up though, but it is 115/81 currently. It will rise to 130/90 though if I get up and work. I was moving some bottled water around earlier and swept the kitchen floor.
I don't know what to do, because the other day when my BP was high, 10 mgs of Lisinopril lowered my BP to 90 over 55. Then two days ago taking the same dose of meds was like taking a sugar pill, and I still had a high heart rate until today. My heart rate is 65 while resting and only goes to 80/88 when working now. The rapid heart rate has been fixed with the Lisinopril. My hands are red and burn some, but that's about it. I need to have my BP lowered while I try and figure out how to get different meds. Here in the USA Lisinopril is commonly prescribed because it is cheap and effective. I might have to stick with it as long as my hands don't get too bad. I hate this BP mess as it is worse than trying to manage an INR and blood sugar. I'm spending all my day trying to regulate a defective body.
I will also be looking into Postural Orthostatic Tachycardia Syndrome, as most of my high BP and heart rate happens upon standing and walking around. The other day it was normal when sitting and then deadly high when standing. Then it went back to normal when sitting down again. The only problem is that my doctor and most doctors in general do not even know about autonomic disorders. It was a sharp head pain the other day and sweating after vacuuming that scared me into taking the meds again. I was sweating from vacuuming two rooms in the house like I had run a marathon. I had to change my shirt and it is cold here this time of year. The sweating stopped once I sat down and relaxed. I will go the ER if necessary, but they always dismiss me as a nutter. That is why I hate going there. I hope the rest of you are having a more pleasant week than I am.
Here is a picture of my pulse oximeter. That is a heart rate of 183 BPM and a low oxygen level of 94. It corrected so fast once I sat back down. This machine usually matches the pulse on my BP monitor so I trust those numbers. Also, I have not had a pulse that high since. My doc will say it is a fluke, or that the machine is broken. I don't even bother with him.
Also, I have such good typing tonight because I have went over this message five different times fixing all of the typographical errors. Otherwise it would look like a schizophrenic was typing on here lol.