Ms or AS or what

[OMgirl]

Hello, guys! I m 29 yrs old.In 2010 doctors sent me to MRI because my period lates for a 2 years.Diagnosed with hyperprolactinemia. Accidentally,they took MRI of whole brain not only of pituitary. They found out that I have lesions on my brain. Diagnosed with MS in 2011 without any symptoms.In 2014 my health getting worst slowly. Fatigue, legs muscles weeknes,balance problems,walking problems...In 2015 I had misscarg. After that I was diagn. with thrombophilia. In jun 2016 I got pregnant (planned pregnancy). In july 2016 had massive PE and 2nd misscar. I am taking sintrom. Did anticardiolipin and lupus test. Lupus anticoag. is 44,5. Doctor told me to do again anticardiol.antib. for 6 weeks. Before,I had everyday headache and my period could be regular only with dostinex. Now no headache and my period is regular. Someone have something similar to me?

[MaryF Administrator]

Hi and welcome, where are you located. MS and Hughes Syndrome/APS have some overlapping symptoms, so this can cause a misdiagnosis, glad it has shown up now, the right specialist can help you immensely, as well as testing for the Hughes Syndrome/APS make sure they test your Thyroid, plus levels of Vitamin D, B12 and Iron also, so as to leave no stone unturned. MaryF

[OMgirl]

Thanks for answers. I m in Serbia. It s not a problem to see doctor in other country. I ll do vit. D and B12 tomorrow.

Best wishes..

[DilysStrides]

Hello and thank you for your thought-provoking post. I was also diagnosed with hyperprolactinemia during my late 20s, and due to an intolerance to pharmacotherapy (I first tried Parlodel and then Dostinex), I eventually underwent transsphenoidal neurosurgery to remove the offending pituitary tumour, although I was not “surgically cured”.

Scientists and medical professionals are now beginning to understand that serious endocrine problems can lead to autoimmunity, and I wonder whether my prolactinoma was indeed a catalyst for the APS/Hughes to develop, although much work still needs to be done to elucidate such mechanisms.

You may be interested in the following article:

Prolactin's role in the pathogenesis of the antiphospholipid syndrome.

ncbi.nlm.nih.gov/pubmed/206...

Although I haven’t written a blog post for a considerable length of time, you might be interested in some information I previously wrote about pituitary tumours:

gallant-strides.blogspot.co...

One thing I would stress is that it is important that you continue your pituitary care with a knowledgeable endocrinologist, in order to regularly check your prolactin levels (at least once a year) and to also follow up with brain MRI imaging to ensure that the tumour isn’t growing.

Please feel free to privately message me if this helps.

Kind regards.