Hello, guys! I m 29 yrs old.In 2010 doctors sent me to MRI because my period lates for a 2 years.Diagnosed with hyperprolactinemia. Accidentally,they took MRI of whole brain not only of pituitary. They found out that I have lesions on my brain. Diagnosed with MS in 2011 without any symptoms.In 2014 my health getting worst slowly. Fatigue, legs muscles weeknes,balance problems,walking problems...In 2015 I had misscarg. After that I was diagn. with thrombophilia. In jun 2016 I got pregnant (planned pregnancy). In july 2016 had massive PE and 2nd misscar. I am taking sintrom. Did anticardiolipin and lupus test. Lupus anticoag. is 44,5. Doctor told me to do again anticardiol.antib. for 6 weeks. Before,I had everyday headache and my period could be regular only with dostinex. Now no headache and my period is regular. Someone have something similar to me?
Ms or AS or what: Hello, guys! I m 2... - Hughes Syndrome A...
Ms or AS or what
Hi and welcome, where are you located. MS and Hughes Syndrome/APS have some overlapping symptoms, so this can cause a misdiagnosis, glad it has shown up now, the right specialist can help you immensely, as well as testing for the Hughes Syndrome/APS make sure they test your Thyroid, plus levels of Vitamin D, B12 and Iron also, so as to leave no stone unturned. MaryF
Thanks for answers. I m in Serbia. It s not a problem to see doctor in other country. I ll do vit. D and B12 tomorrow.
Best wishes..
Hello and thank you for your thought-provoking post. I was also diagnosed with hyperprolactinemia during my late 20s, and due to an intolerance to pharmacotherapy (I first tried Parlodel and then Dostinex), I eventually underwent transsphenoidal neurosurgery to remove the offending pituitary tumour, although I was not “surgically cured”.
Scientists and medical professionals are now beginning to understand that serious endocrine problems can lead to autoimmunity, and I wonder whether my prolactinoma was indeed a catalyst for the APS/Hughes to develop, although much work still needs to be done to elucidate such mechanisms.
You may be interested in the following article:
Prolactin's role in the pathogenesis of the antiphospholipid syndrome.
ncbi.nlm.nih.gov/pubmed/206...
Although I haven’t written a blog post for a considerable length of time, you might be interested in some information I previously wrote about pituitary tumours:
gallant-strides.blogspot.co...
One thing I would stress is that it is important that you continue your pituitary care with a knowledgeable endocrinologist, in order to regularly check your prolactin levels (at least once a year) and to also follow up with brain MRI imaging to ensure that the tumour isn’t growing.
Please feel free to privately message me if this helps.
Kind regards.
Fever
Blood Clotting Disorders and Lupus??
