As I've no APS specialist ..

[fitzyc]

Can anyone tell me why at Xmas my APL levels were 68 now 108 . ? At Xmas time I was passing large fist size clot's ..going to APS specialist next week getting bits ready ...😨

[Manofmendip]

We are not medical professionals here and we are unable to diagnose or comment on what you ask us. You will need to discuss this with your APS specialist, when you see them.

Dave

[Lure2]

I am glad that you have got an APS-Specialist now. That is a must for us to have someone to ask questions and who understands our symptoms.

Do not worry about the levels of the antibodies. I have had all three antibodies very high for 14 years but when having my Warfarin in the right level and eating healty and exercising every day I feel ok.

Best wishes to you and Good Luck when seeing your Specialist next week. Write your questions down and take a pencil with you.

Kerstin in Stockholm

[fitzyc]

At tks Kerstin ...just have Load's of questions ..?.nobody able to tell me ans ..will bring someone in with me next tues ..hard to take in ☺

[Holley]

Please share your experience once you've seen the specialist. I had the heads of hematology department at two major hospitals in Washington DC debating whether or not I met the criteria for an APS diagnosis. I was eventually diagnosed with it.

[fitzyc in reply to Holley]

Hi holley will do ..this is horrible syndrome ..all doc's generally want to help ..😯