Lupus confused?!: Hi everyone. I'm new... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Lupus confused?!

Popper profile image
5 Replies

Hi everyone. I'm new to this even though my first positive for lup anticoagulant was 16 years ago. My baby was born full term at 2k! Due to my blood clotting. Since I have had 3 positives for lupus and lupus anticoagulant and 2 beg. V symptomatic last year ended up on steroids. Rheumatologist will only recognise the neg results! Seeing haematologist next week. V frustrating. Anyone with similar issues? Many thanks and wish all well.

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Popper
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Manofmendip profile image
Manofmendip

Hello and welcome.

To help us to help you, where are you from?

Best wishes.

Dave

MaryF profile image
MaryFAdministrator

Hi there, welcome, where are you located? We do have a list of recommended specialists across the UK, and if not in UK, I will still endeavour to help further. MaryF

Popper profile image
Popper in reply toMaryF

Hi. Thanks so much for your message. I live in the Midlands about 25 miles south of Birmingham uk.

MaryF profile image
MaryFAdministrator in reply toPopper

It is very very important that you get your GP on side and get one of our recommended specialists, a Rheumatologist if possible who can then refer you to a Haematologist. Best of luck. MaryF

dward1 profile image
dward1

Hi,this is Diane from GEORGIA i'am seventy YRS OLD now .the doctor told me at 32yrs old doing very well no medication, has not been in hospital GOD HAS REALLY BLESS ME take a lots of vitamin and supplements ,I get all my supplements for Andrew Lessman the founder of procaps labs with no fillers in them Natural supplement, you can live with this

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