I've just been diagnosed with Hughes (have had Sjogrens & hypothyroidism for years) after suddenly & with no warning developing blood clots in my left arm which blocked the artery and left my hand, cold, white, paralysed & in agony.
I was operated on 3 times in 24hrs - the first operation lasting
2 & 1/2hrs under local anaesthetic only, was very traumatic, the next two were under generals.
I have a 6 inch wound in the crook of my elbow which seems to be healing o.k but still painful and I'm now on Warfarin for life.
This was done almost 3 weeks ago and I was in hospital for 10 days.
I have no pulse in my left arm and have to wear a glove 24hrs a day or my hand gets cold, white & numb/painful.
This has knocked me for six, physically & emotionally.
I feel very unwell and weak, still need lots of 'looking after'. Just having a shower exhausts me and I'm very anxious and very tearful.
My GP has never come across this before, was amazed that I had no pulse, but just says to keep resting & suggested anti depressants.
Has anyone else experienced anything like this?
I feel like I should be recovering quicker and don't know why I still feel so ill & I'm frightened that there's something 'wrong' and my arm/hand will never recover.
I've never been through such a terrifying ordeal, nor had I heard of Hughes until now. Feel very lost & frightened.
Any advice would be very gratefully received.