Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for March 2015

Hughes Syndrome

I have a son who for years was left struggling to walk, move etc and told to man up by his doctor. Last July '14 he had a heart attack, 2 stents later and...

I have a son who for years was left struggling to walk, move etc and told to man...

•9 years ago

House of Lords debate

We would like to bring your attention to the first ever short debate held in the House of Lords on antiphospholipid (Hughes) syndrome. The question posed by...

We would like to bring your attention to the first ever short debate held in the...

•9 years ago

Recently Diagnosed with APS and a little confused.

Hello everyone my name is Jarvis and I am 24 years old from New York. I am a little baffled by my diagnosis because I went into the emergency room with severe...

Hello everyone my name is Jarvis and I am 24 years old from New York. I am a li...

•9 years ago

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Fibro... the medical community in some areas do need to catch up.....

http://www.thyroiduk.org.uk/tuk/related_conditions/Fibromyalgia-medical-mystery-solved.html MaryF

http://www.thyroiduk.org.uk/tuk/related_conditions/Fibromyalgia-medical-mystery-...

Administrator•9 years ago

Curcumin for Hughes Syndrome (APA)

Both NF-κB and c-Jun/AP-1 involved in anti-β2GPI/β2GPI-induced tissue factor expression in monocytes. Our previous data has demonstrated that Toll-like...

Both NF-κB and c-Jun/AP-1 involved in anti-β2GPI/β2GPI-induced tissue factor exp...

•9 years ago

Worried and wondering

In a nutshell I was told I had a DVT in my right leg in November put in hospital and on xeralto. Went and had a ultrasound on right leg cpl of weeks ago and...

In a nutshell I was told I had a DVT in my right leg in November put in hospital...

•9 years ago

Lifelong Rivorxaban for APS

Hi all, I'm new to this forum having been diagnosed with APS by the wonderful Professor Khamashta at London Bridge 2 weeks ago. Briefly, my background is:...

Hi all, I'm new to this forum having been diagnosed with APS by the wonderful Pr...

•9 years ago

lupus anticoagulant positive

Hi, Apologies in advance if this post is a bit long! Last February (2014) at the age of 37 I suffered massive bilateral PE. I had no previous serious health...

Hi, Apologies in advance if this post is a bit long! Last February (2014) at ...

richardtvaughan

•9 years ago

Support group in Northamptonshire???

Hi All, I'm new here and hoping someone can help. I've been searching online trying to find a support group in the Northamptonshire area but I can't find...

Hi All, I'm new here and hoping someone can help. I've been searching online try...

•9 years ago

Medication merry go round

Has anyone else been on the medication merry go round? I've had 3 prescriptions now of hydroxychloroquine and each time it's had a different name....

Has anyone else been on the medication merry go round? I've had 3 prescriptions...

•9 years ago

Haematologist

Hi my GP is happy to write a letter to a local haematologist I have looked on the Hughes site and seen there is one at Musgrove park hospital in Taunton...

Hi my GP is happy to write a letter to a local haematologist I have looked on th...

•9 years ago

Hello.

Just to say hello again. I have not been on here for awhile, as not been too well. Best wishes to everyone on here.☺

Just to say hello again. I have not been on here for awhile, as not been too wel...

•9 years ago

Taking Aspirin for APS

When taking aspirin, what dosage do you usually use, and how long does it take to feel the effects? For example, let's say you are taking 2 baby aspirin in...

When taking aspirin, what dosage do you usually use, and how long does it take t...

•9 years ago

Muscle Pain & Weakness

I was diagnosed with APS a couple of months ago. I take Aspirin for it and see a Rheumatologist. I also have Osteoarthritis, Neuropathy, Hashimoto's...

I was diagnosed with APS a couple of months ago. I take Aspirin for it and see...

•9 years ago

Haematoma after a fall.

I stumbled and fell quite badly last week and hit my shin. Warfarin showed what its good for and now my leg looks like a pair of combat trousers with all the...

I stumbled and fell quite badly last week and hit my shin. Warfarin showed what ...

overnighthearingloss

•9 years ago

via Hughes Syndrome Foundation/Facebook page NEW TEST from Japan

If you are on Facebook do give the page a like on there, I will link it at the bottom but first .... Significant new research from Japan could be finally (!)...

If you are on Facebook do give the page a like on there, I will link it at the b...

Administrator•9 years ago

APS, Factor 5 and Protein C Def. - Fatigue, vertigo, headaches, rashes and bruising

History: 32/yr/old male diagnosed w/ APS, Factor V Leiden - Heterozygous, and Congenital Protein C Deficiency in 2012. DVT in upper arm is what led to...

History: 32/yr/old male diagnosed w/ APS, Factor V Leiden - Heterozygous, and Co...

•9 years ago

aps and mold

have aps and recently discovered my house has been infested with mold for over 3 years, including the a/c unit. question, besides constant allergy and nose...

have aps and recently discovered my house has been infested with mold for over 3...

•9 years ago

Any APS specialists in Dallas Texas area?

Does anyone know of any APS specialists in the Dallas, Texas area?

Does anyone know of any APS specialists in the Dallas, Texas area?

•9 years ago

Compound found in red wine & grapes may help prevent memory loss

http://www.newswise.com/articles/compound-found-in-grapes-red-wine-may-help-prevent-memory-loss Just what some may wish to hear

http://www.newswise.com/articles/compound-found-in-grapes-red-wine-may-help-prev...

overnighthearingloss

•9 years ago

Ear problem

Hi all, I have a problem with my right ear, constant ringing noise. A couple of months ago I noticed a very loud gushing noise in the right.ear, since then I...

Hi all, I have a problem with my right ear, constant ringing noise. A couple of ...

•9 years ago

Vitamin D Reverses aPL-induced Inflammation

http://www.ncbi.nlm.nih.gov/pubmed/25070806 "Women with antiphospholipid syndrome (APS) are at increased risk of recurrent pregnancy loss (RPL) and...

http://www.ncbi.nlm.nih.gov/pubmed/25070806 "Women with antiphospholipid syndro...

•9 years ago

Left Side of face hot-any advice please

Hi I have been under a neurologist for over 1 year, was ? MS but they say not. Lots of symptoms such as brain fog/cognitive issues/word finding an issue....

Hi I have been under a neurologist for over 1 year, was ? MS but they say not. ...

•9 years ago

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