I have a son who for years was left struggling to walk, move etc and told to man up by his doctor. Last July '14 he had a heart attack, 2 stents later and three and a half weeks on the heart ward, we finally found out he has Antiphospholipid Syndrome and SLE, he is 27 years old. It took a massive battery of tests to get a diagnosis, his body was at the time, as one doctor said, 'riddled with clots' I thank god he received such excellent care and diagnosis by all those who took care of him back then. He is now in the process of waiting to be told if a bypass operation will help him walk without him having to stop every few metres due to the lack of blood flow to his legs. He has a scar on his face and a dinge in his nose, I have no idea why the GP didn't even consider Lupus because by doing research, we never found a picture of psoriasis like what he had on his nose, shoulders and elbows. We spent ages trying to find out what was wrong with him, even seeing different doctors, took a major health scare to finally be told what was wrong with him, was also when we found out he was massively deficient in vitamin D and that his GP should have dealt with this. I hope in future, other doctors will know about Hughes Syndrome and not fob people off saying they are work shy and theres nothing wrong with them.
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