We would like to bring your attention to the first ever short debate held in the House of Lords on antiphospholipid (Hughes) syndrome.
The question posed by Baroness Drake was: “what actions are Her Majesty’s Government taking to raise awareness of the autoimmune condition antiphospholipid syndrome (APS) amongst general practitioners and throughout the National Health Service”.
She was supported by our charity’s wonderful Chair, Baroness Estelle Morris, with Lord Hunt arguing for and Earl Howe against.
Please note that this Health Unlocked forum got a mention too - and thank you to everyone who voted in the GP awareness poll that allowed us to gather this information
You can either read the transcript of the debate here:
or watch the video here:
The debate was held on Monday 9th March 2015 at 8.02 pm so, if you are watching the video, please drag the timer slide to 8.02.27 to find the beginning.
Needless to say, we are delighted that APS/Hughes is on the agenda at the Lords, and one of the outcome of the debate is that the government now supports the need for a UK prevalence study.
We will continue to campaign for earlier testing for women with miscarriage, to have all the tests for antiphospholipid antibodies included in thrombophilia screens in every hospital in the UK, and testing for anyone under the age of 50 who has a stroke, DVT or heart attack.
We hope you are as pleased with this breakthrough as we are, and thank you for supporting our little charity.