Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,402 members•10,612 posts

All posts for January 2015

What's the magic drug? Kay

After a long session in A&E yesterday, due to really heavy bleeding. Taking me to 10 days now. I have been prescribed Utovan, a progesterone hormone , ment to...

After a long session in A&E yesterday, due to really heavy bleeding. Taking me t...

Lozzaa

•10 years ago

19 Replies

Before and after c section

Hi all of you .. I am curently 35 week with positive lupus anticoagulant and I am on clexane 20mg + 40 mg. I decided to have c section this time because I dont...

Hi all of you .. I am curently 35 week with positive lupus anticoagulant and I a...

Glassart

•10 years ago

8 Replies

Newbie!

Hi all! I've recently been diagnosed with APS aswell as ITP as a result of annual monitoring of my Haemochromatosis which I was diagnosed with around 10 years...

Hi all! I've recently been diagnosed with APS aswell as ITP as a result of annu...

andyb1969

•10 years ago

15 Replies

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What should I do ?

Good morning...I am looking for some advice please. I was diagnosed with PAPS in 1998 after three recurrent miscarriages, also polycystic ovaries and was told...

Good morning...I am looking for some advice please. I was diagnosed with PAPS i...

teri1111

•10 years ago

7 Replies

Lovenox

First time posting so please bare with me. I was diagnosed with APS 3 yrs ago after 2 PE's which caused cardiac arrest. Also diagnosed with lupus in 2001. I...

First time posting so please bare with me. I was diagnosed with APS 3 yrs ago af...

Sarahjoan72

•10 years ago

3 Replies

Anticoagulation

Happy New Year here you all! In the end of last year APS specialist visited our hospital. I didn't see him, but he looked my case and I got letter about it. He...

Happy New Year here you all! In the end of last year APS specialist visited our ...

Leenalina

•10 years ago

14 Replies

Travel Insurance

Hi All, I am wondering if anyone else has managed to get travel insurance and where from? Thank you Beth Willoughby

Hi All, I am wondering if anyone else has managed to get travel insurance and w...

bethw

•10 years ago

9 Replies

Plaquenil side effects

I know this might be an odd question but has anyone had the odd side effect of everything tasting of glue? Even water! I started on plaquenil just under a...

I know this might be an odd question but has anyone had the odd side effect of e...

Plumstead15

•10 years ago

6 Replies

Symptoms !!!!!!

Was wondering what your symptoms are ? just wanna see if anyone has some of the same symtoms as me and if anyone has had strokes due to this diease ?

Was wondering what your symptoms are ? just wanna see if anyone has some of the ...

jeanietrawick

•10 years ago

13 Replies

Ovelapping diseases: Multiple Sclerosis, Lupus, Arthritis, Crohns, APS and the changing symptoms

While I was diagnosed as M.S. two decades ago, then not MS, then probable Lupus ..... At this point, my docs have settled on hypercoagulable with an...

While I was diagnosed as M.S. two decades ago, then not MS, then probable Lupus ...

Tranquility1

•10 years ago

16 Replies

Good appointment

Having moved down to Cornwall from London, I was referred to the Royal Cornwall Hospital in Truro to be covered for my APS. What an amazing team. The...

Having moved down to Cornwall from London, I was referred to the Royal Cornwall ...

london-lass

•10 years ago

7 Replies

annual report/very readable/HSS/Reumatology

http://www.hss.edu/rheumatology-annual-report.asp?mc_cid=d26a3491fa&mc_eid=4019435e9e#.VLf3tEfF_Ls

http://www.hss.edu/rheumatology-annual-report.asp?mc_cid=d26a3491fa&mc_eid=40194...

Hidden

•10 years ago

7 Replies

Mis-diagnoses?

Hi everyone, Happy New Year. I was diagnosed with APS in 2008 at St Mary's hospital, London(early MC hospital). I have visited St Thomas also as an APS...

Hi everyone, Happy New Year. I was diagnosed with APS in 2008 at St Mary's hospi...

Rhian21

•10 years ago

12 Replies

Hystorectomy

Has anyone had one while having APS? And what's the recovery like? My coil came out yesterday!( massive clots) Had it fitted due to very heavy periods. It made...

Has anyone had one while having APS? And what's the recovery like? My coil came ...

Lozzaa

•10 years ago

14 Replies

Supplements

Hi everyone I am new to this forum.I have not been yet diagnosed but there is suspicion with aps.My symptoms are vertigo(its like sinking when walk).Everything...

Hi everyone I am new to this forum.I have not been yet diagnosed but there is su...

L0sted

•10 years ago

13 Replies

hematologist appointment

Hi everyone. had my second appointment this week. Week positive result , my consultant said she would have confirmed APS anyway as I had the right history. (...

Hi everyone. had my second appointment this week. Week positive result , my cons...

Lozzaa

•10 years ago

6 Replies

Study:Patients with APS not taking anticoagulants at higher risk for thrombotic events

I think most of us know this- but just in case!...

tim47

•10 years ago

1 Reply

Study: Prothrombin Fragment 1.2 and stroke in those with antiphospholipid antibodies

Important Study from 2000. Study Title: Value of prothrombin fragment 1.2 (F 1.2) in the diagnosis of stroke in young patients with antiphospholipid...

Important Study from 2000. Study Title: Value of prothrombin fragment 1.2 (F 1...

Tranquility1

•10 years ago

3 Replies

Stabbing and feeling like somebody is pushing down on top of my head

I'm 18 years old. I've had migraines for almost 15 years. I've been to the neurologist and have medication. I've had this stabbing and pressure pain for 2 to...

I'm 18 years old. I've had migraines for almost 15 years. I've been to the neuro...

Hidden

•10 years ago

4 Replies

Had my appointment with rheumatologist. It went very well. I had blood tests and chest xray and am booked in for an MRI.

I am going back to see Dr Arvind Kaul at st Georges hospital in four weeks. He was really nice and understood everything. Things are looking up xx

I am going back to see Dr Arvind Kaul at st Georges hospital in four weeks. He ...

Hidden

•10 years ago

16 Replies

Dr not doing aps blood tests ?

Hi I have not used this site before but wow has it helped me to understand my aps better, thank you all. What I wanted to know is do gps do the blood tests for...

Hi I have not used this site before but wow has it helped me to understand my ap...

Cob67

•10 years ago

6 Replies

Do our medical files need to carry a formal warning?

I have just had another experience where, for various reasons, hospital medical staff did not fully appreciate how APS can complicate the otherwise most...

I have just had another experience where, for various reasons, hospital medical...

tim47

•10 years ago

6 Replies

vascular Dementia

Having had a TIA and being left with small areas of damage to my brain, i'm left wondering if it is now possible for me to get vascular Dementia, i'm on...

Having had a TIA and being left with small areas of damage to my brain, i'm left...

kay67

•10 years ago

5 Replies

Feeling Unwell

Hi Everyone, I have been diagnosed with APS and have been feeling really unwell for the past week, on Friday I had a horrendous pain in the centre of my chest...

Hi Everyone, I have been diagnosed with APS and have been feeling really unwell...

bethw

•10 years ago

8 Replies

Low INR as a necessary indicator of APS

Hi, everyone, I am new to this forum. I have not been diagnosed with APS but I have been suffering from many symptoms ( serious brain fog, memory problems,...

Hi, everyone, I am new to this forum. I have not been diagnosed with APS but I ...

BRISOC

•10 years ago

14 Replies

Ear Problems

Can any one advise me on Hughes and connections to ear problems! For at least 2 months now I have had a feeling of blocked ears! I feel as if I've been on an...

Can any one advise me on Hughes and connections to ear problems! For at least 2 ...

Teacher71

•10 years ago

12 Replies

Can anyone tell me if theres a link with APS or other AI condition with very high IgE?

Yesterday I had it confirmed my APS is secondary to another AI problem (suspect SLE). My son has always suffered a lot of abdominal pain and had been told he's...

Yesterday I had it confirmed my APS is secondary to another AI problem (suspect ...

Bonnie39

•10 years ago

2 Replies

Sadness and loss, could use some advice about baby loss, APS and what treatment you used to get to a healthy baby.

Backstory, I was diagnosed with APS when I was 21 years old, at that time they said it was Lupus Anticoagulant, but have since amended that I have the...

Backstory, I was diagnosed with APS when I was 21 years old, at that time they s...

carterandamelia

•10 years ago

19 Replies

Haven't posted in a while, new things happening

Since my last post a few months ago, I have been having such problems with my lower back that put me in bed for almost a week over the holidays, then on top of...

Since my last post a few months ago, I have been having such problems with my lo...

becca10

•10 years ago

9 Replies

Clotting and long haul flights

Hi I would go for evaluation as soon as possible. Clotting with as can happen in any vessel. I have primary as and quite a few other clotting problems...

Hi I would go for evaluation as soon as possible. Clotting with as can happen i...

margbott

•10 years ago

1 Reply

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2015

What's the magic drug? Kay

Before and after c section

Newbie!

What should I do ?

Lovenox

Anticoagulation

Travel Insurance

Plaquenil side effects

Symptoms !!!!!!

Ovelapping diseases: Multiple Sclerosis, Lupus, Arthritis, Crohns, APS and the changing symptoms

Good appointment

annual report/very readable/HSS/Reumatology

Mis-diagnoses?

Hystorectomy

Supplements

hematologist appointment

Study:Patients with APS not taking anticoagulants at higher risk for thrombotic events

Study: Prothrombin Fragment 1.2 and stroke in those with antiphospholipid antibodies

Stabbing and feeling like somebody is pushing down on top of my head

Had my appointment with rheumatologist. It went very well. I had blood tests and chest xray and am booked in for an MRI.

Dr not doing aps blood tests ?

Do our medical files need to carry a formal warning?

vascular Dementia

Feeling Unwell

Low INR as a necessary indicator of APS

Ear Problems

Can anyone tell me if theres a link with APS or other AI condition with very high IgE?

Sadness and loss, could use some advice about baby loss, APS and what treatment you used to get to a healthy baby.

Haven't posted in a while, new things happening

Clotting and long haul flights

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