Hi everyone, Happy New Year. I was diagnosed with APS in 2008 at St Mary's hospital, London(early MC hospital). I have visited St Thomas also as an APS patient. Last month I saw a hematologist. It was a bad day for me as I was feeling smoggy/confused. I had questions to ask but never got around to any as this young Dr told me that he did not think I had APS and if the next blood tests were negative, that would prove it. I tried asking him which criterion he was using to conclude his information. I explained that St Thomas are the leaders in this field, his answer was concise: yes but they are not hematologists are they! He tried reassuring me that it was indeed good news that I did not have APS.
After I returned home I had a complete panic attack! Much as I do not WANT to be ill, the fact that I AM is testimony to the fact that something is causing it! So to be told 7 years after a diagnoses that I am fit and healthy doesn't seem like good news at all when considering the fact that I am still suffering with migraines, lethargy, confusion, livedo rash etc etc, and that I thought I had gained answers to close my 5 MC's and Emergency Ectopic Hemorrhage. Now it seems I have to re-wind to 7 years ago and start all over again!
His reasoning was that I have only ever tested positive to IgM and not IgG.
In my research and according to the revised 2006 Sopporo Criteria (Laboratory criteria)
'aCL antibody of IgG and/or IgM isotype in serum or plasma.
I think that clearly states IgG and IgM or IgM alone.
I think my IgM has been marked as 5.5, 17 and 7.4 and in the original diagnoses I had abnormal DRVT written down on two seperate occassions. More recently my results are proving negative.
Can anyone shed some light for me here. Have I been mis-diagnosed by St Mary's Hospital in 2008?