Hi just wondering if anyone has manag... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,392 members10,588 posts

Hi just wondering if anyone has managed to get the dreaded PIP while working part time. I have been off sick for a year and have been told I

sangje profile image
4 Replies

am only allowed to go back part time. I also have fibro and query ankylosing spondulitis and am of course a good day bad day person but thanks to the pain clinic i attend have been much more mobile recently. Any advice?

Written by
sangje profile image
sangje
To view profiles and participate in discussions please or .
4 Replies
MaryF profile image
MaryFAdministrator

Hi, there are people on here who have or are going through this process who can answer you more accurately. Glad to hear that the pain clinic is coming up trumps. Please be aware that you need to keep an eye on your Thyroid, at times this diagnosis is given, and it turns out that there is an underlying problem with this. As Professor Hughes often quotes and write, the trio of disease, Hughes, Thyroid and Sjogrens......is common. Unfortunately the tests are very unreliable, and also the diagnosis poor due to the narrow banding given to test results! MaryF

sangje profile image
sangje

Thanks Mary - O yes I know you are the champion of the link between these - I have asked but of course they always say 'borderline' and it goes no further. I have found you have to pick your battles and timing - i do not want them to think i am trying to diagnose myself again (although that was how I got the APS diagnosis -I think as I like you am sero negative they are sceptical.) Yes the pain clinic has been a life saver - I am hoping they might ask people there for info rather than just GP....

MaryF profile image
MaryFAdministrator in reply to sangje

Being told you are borderline for Thyroid tells me a lot! MaryF

sangje profile image
sangje

Thanks APsnotFab I will give it a go - its just when i looked on the thing it didnt seem like i was bad enough and i thought it might look bad that i was able to do any sort of work

I have looked on some sites and it seems you have to think about your worse days - so on that basis i might be in with a chance. Thanks - it really helps hearing form others.

Not what you're looking for?

You may also like...

Hi everyone I just wondering if anyone in my area has been diagnosed with APS.

Hi, my name is Stephanie L., though I go by Soul Rebel on line. I live in Roswell, NM. I was just...

Hi im new to this site, and was wondering if anyone has jerking of the legs? It mainly happens at night

but rarely happens in the day to. i cant controll it and it can be painful. the next day i feel...

I have just been told I am positive for this condition and there running tests to see how bad it is..

I have had 3 miscarriages and I feel tired a lot of the time being a mum to a 3 year old working...

I had a routine eye test yesterday, and was told I have early stages of macular degeneration, has anyone else been diagnosed with this?

I am almost 58 so not that old!

I have got to prove that I am having an INR test and my INR numbers ....to get a Warfarin prescription?! Anyone else been asked for proof?!

I went to my GP today... While putting in my repeat prescription for warfarin the lovely...