Hi everyone, not very well at the moment, the weather is playing havoc with my body. I am really having a lot of problems when out in the sun,I don't go out till eveningtime most days. Does anyone else have this extreme fatigue and headaches when out in sunny weather?
Trouble with the weather: Hi everyone... - Hughes Syndrome A...
Trouble with the weather
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Hi there, I think the heat can make it all a bit worse. I am certainly keen on an electric fan at night...and lots of cool baths! I also use a trick once used for my children when small, a large hat under the tap, and then wrung out and applied damp, before I go out for any length of time if very sunny and hot! MaryF
Hi I react on changes in weahter like thunderstorms.
Before I started warfarin I had a lot of trouble with my eyes and it was very difficult to be out when the sun was shining without sunglasses. Much better now anticoagulated.
I live in Sweden and this summer we have had the problem that it is too cold.
Best wishes from Kerstin in Stockholm
I do the weather seems to affect people with Arthritis they often say, so why not us.
I hate being out in the sun, weather changes also makes me worse, I am the only one in the house who doesn't have their shower on hot.
I know it sounds like I am mad but I think the stages of the moon make a difference. Not the full moon but the 3/4 stage I don't developed big pointed teeth ! But more muddled
It would be interesting to see if we all had problems with our INR when the weather changes
I have been exactly the same as you last week
thank u all for your replies, I wear factor 50 all summer and take vital Day supplements. I feel I have to go out because my husband + friends don't really understand what it feels like to feel so exhausted. I've been on plaquenil for ages, but it doesn't really help.sorry I'm whinging a bit but it's difficult when people continually tell you how well you look. I shall take Mary's advice and Wear a hat. X