Trouble with the weather

[Elfie1]

Hi everyone, not very well at the moment, the weather is playing havoc with my body. I am really having a lot of problems when out in the sun,I don't go out till eveningtime most days. Does anyone else have this extreme fatigue and headaches when out in sunny weather?

[MaryF Administrator]

Hi there, I think the heat can make it all a bit worse. I am certainly keen on an electric fan at night...and lots of cool baths! I also use a trick once used for my children when small, a large hat under the tap, and then wrung out and applied damp, before I go out for any length of time if very sunny and hot! MaryF

[Lure2]

Hi I react on changes in weahter like thunderstorms.

Before I started warfarin I had a lot of trouble with my eyes and it was very difficult to be out when the sun was shining without sunglasses. Much better now anticoagulated.

I live in Sweden and this summer we have had the problem that it is too cold.

Best wishes from Kerstin in Stockholm

[daisyd]

I do the weather seems to affect people with Arthritis they often say, so why not us.

I hate being out in the sun, weather changes also makes me worse, I am the only one in the house who doesn't have their shower on hot.

I know it sounds like I am mad but I think the stages of the moon make a difference. Not the full moon but the 3/4 stage I don't developed big pointed teeth ! But more muddled

It would be interesting to see if we all had problems with our INR when the weather changes

I have been exactly the same as you last week

[Elfie1]

thank u all for your replies, I wear factor 50 all summer and take vital Day supplements. I feel I have to go out because my husband + friends don't really understand what it feels like to feel so exhausted. I've been on plaquenil for ages, but it doesn't really help.sorry I'm whinging a bit but it's difficult when people continually tell you how well you look. I shall take Mary's advice and Wear a hat. X

[Lure2 in reply to Elfie1]

I Think you shall talk to your APS-doctor that you do not feel good. Perhaps you need more Plaquenil or Another bloodthinner. It is very important to be enough anticoagulated!

Best wishes from Kerstin in Stockholm