Good afternoon everyone.
Some of you will know I have been waiting for appointments and results from tests etc. Today I received a letter from the Rheumatoligist who I saw in Feb (I haven't had a follow up apt yet) and the result from the MRI scan on my brain. It reads:
'Just to let you know that your recent MRI scan showed no evidence of Infarction. Small scattered white matter hyper-intensities were seen, in keeping with mild small vessel disease.
There was an incidental finding of mild fluid in the right mastoid air cells and also left maxillary antrum but nil else noted.'
He goes on to say I will be seen in the clinics at the Rheumatology and Neurology departments but my MRI scan is mostly within normal limits, which should be reassuring' ????
I did receive a phone call from someone else at the hospital who told me no strokes/Tia's showed on the scan over a month ago then got this letter today.
I have not seen a neurologist yet.
I have sat here for over 5 hours since the letter arrived in a state of confusion and shock. I am trying to find out if I have APS. I have given 4 positive blood tests for Cardiolipin M. There have been a host of issues over the years, hence the MRI scan on my brain. I have the feeling from what as been said already by the Rheumatoligist that he doesn't think I have APS and will have to wait until my appointments come through from both clinics.
I was told last week that my follow up was in December with the Rheumatologist so I complained. An apt will be brought forward I am told (I would of gone mad otherwise)
Was anyone else diagnosed with Hughes/small vessel disease in the brain?
Would small vessel disease point towards Hughes?
I know you cannot give diagnoses but any help/advice would be good.
Thank you in advance.