Greetings everyone. I had an appointment earlier this month with an internal medicine doc whose specialty is hematology. I gave him a run down of what had been happening the last two years including the positive aPL tests in the last year. He said he could not put me on a blood thinner as I have not had a thrombotic event and I stood more chances of bleeding from it than it helping me. He said I have a lot of neurological symptoms and he agrees with the diagnosis of MS by the US doctors. (Remember I am in Canada).
So when I realized that the MS clinic here dismissed me saying to consider APS and this doctor now dismissing me that it is MS and I don't have an MS specialist to follow up with I felt abandoned. So I said to him, "something is wrong with me, I went to the US as it was taking too long to get to see you, the MS clinic won't see me again and you say you cannot do anything. I am not a doctor so I cannot treat myself therefore who is going to treat me?" At this point he said there is a hematologist 4 hours away in Hamilton who specializes in blood clots so he will refer me there and also get me a new neurologist.
I really feel hopeless in getting help. I am on disability and cannot afford to seek help elsewhere. Someone helped me with the US doctors and cannot do anymore. So I do not know what my diagnosis is. Is it APS, is it MS or do I have both? I have since gotten an appointment for the MS clinic 2 hours away. I am thinking that the doctor contacted them. I have not received an appointment for the other hematologist. I will call to see how that is going on.
I wanted to write before but have been feeling a bit down and confused. Thanks for reading.