Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,355 members • 10,542 posts

All posts for January 2014

Can anyone recommend an APS specialist in Ireland, Europe?

Hi, I live in Galway, Ireland and I'm looking for an APS specialist. I have anti-phospholid antibodies and have had 4 miscarriages. I'm not sure yet whether I...

Hi, I live in Galway, Ireland and I'm looking for an APS specialist. I have anti...

Scootermom

•10 years ago

2 Replies

How do antibiotics affect warfarin contrilled inr?

Had a week on amoxycilin for laryngitis. Had venous blood test today to check and its fallen from 2.4 to 1.4. Nothing lese has changed, but have started on...

Had a week on amoxycilin for laryngitis. Had venous blood test today to check a...

Bonnie39

•10 years ago

8 Replies

I have a stroke in Feb 2007, the spec realized have Huges or APS disease. My kids our 15, 20, 23. When should they get tested?

Also what test should they have see, to see they have disease that have? Another question i had gran mal seizere in 2010, could it be because my APS or my scar...

Also what test should they have see, to see they have disease that have? Another...

msperling

•10 years ago

7 Replies

Want to take advantage of all our features? Just log in!

via Hughes Syndrome Foundation Charity

Our charity has been involved with the Prescription Charges Coalition since it began a few years ago. We'd like to see free (or at least, much cheaper!)...

Our charity has been involved with the Prescription Charges Coalition since it b...

MaryF

Administrator•10 years ago

4 Replies

Asprin

I started asprin just before Xmas. My prothrombin time prior to asprin was 12.5. Despite the asprin my recent time is 11.5. Is this cause for concern? I would...

I started asprin just before Xmas. My prothrombin time prior to asprin was 12.5....

loublou

•10 years ago

4 Replies

TIA - Black Out - Loss of vision - confusion

I seem to have had my first TIA - so I am told At 44 - does this mean it's the end of the road for me .....I am a little anxious ??

I seem to have had my first TIA - so I am told At 44 - does this mean it's the ...

stevespoc

•10 years ago

24 Replies

An informal meet up group East Anglia

Hi, I live out in Suffolk, and intend to start an informal meet up group, if there is any interest please let me know. MaryF x

Hi, I live out in Suffolk, and intend to start an informal meet up group, if th...

MaryF

Administrator•10 years ago

15 Replies

I am suffering after a femur fracture and unplanned major surgery with swelling. Is it worse as I have APS ?

Following a terrible fall in December I am trying to get some life back. However my knee and thigh keep swelling up and it is affecting my return to mobility....

Following a terrible fall in December I am trying to get some life back. However...

Lovehuskies02

•10 years ago

7 Replies

Bruises

Why am i bruising so easily? Im not currently on any treatment

clumsy3

•10 years ago

6 Replies

What medication options are there for aggressive APS ?

After eight years of silence from medics post stroke, and MRI for an apparent lupus attack showed extent of my stroke and number of TIAs was urgently placed on...

After eight years of silence from medics post stroke, and MRI for an apparent lu...

Bonnie39

•10 years ago

7 Replies

Weakness in left arm

A few weeks ago I experienced pain/weekness all over my left arm for just a few minutes. I contacted my hematologist and he said doesn't sound like a clot, may...

A few weeks ago I experienced pain/weekness all over my left arm for just a few ...

MJPrachyl

•10 years ago

5 Replies

Question

Is Hughes Syndrome the same as Antiphospholipid Antibody Disorder?

MJPrachyl

•10 years ago

23 Replies

What does a positive anti dsdna antibody test mean?

Hi all, I have APS, coeliac, hypothyroid and fibro. I've just had a copy of my latest bloods back from. St Thomas's and my anti dsdna antibodies were raised...

Hi all, I have APS, coeliac, hypothyroid and fibro. I've just had a copy of my l...

Paleosooze

•10 years ago

3 Replies

A New Published Article/Magazine Article (via) Hughes Syndrome Foundation

http://www.hughes-syndrome.org/resources/pdfs/Access-Mag-Interview-2014.pdf MaryF x

http://www.hughes-syndrome.org/resources/pdfs/Access-Mag-Interview-2014.pdf Mar...

MaryF

Administrator•10 years ago

8 Replies

Do you go to London Bridge Hospital?

This may be of interest to you http://www.theguardian.com/business/2014/jan/16/competition-commission-private-healthcare

This may be of interest to you http://www.theguardian.com/business/2014/jan/16/c...

overnighthearingloss

•10 years ago

5 Replies

Is there anyone out there that has had a swollen Lymnode as a result of the APS?

l have already had a stroke in 1991 which had left scar tissue on my brain that now causes me to have seizures mostly at night , this all depends on what kind...

l have already had a stroke in 1991 which had left scar tissue on my brain that...

Hidden

•10 years ago

8 Replies

Is Aspirin Enough?

Hi there. I was diagnosed in 1999 after recurrent miscarriages. I also have Factor V Leiden and Protein C or S deficiency (can't remember which one :/). I am...

Hi there. I was diagnosed in 1999 after recurrent miscarriages. I also have Fact...

Moon_Shadow

•10 years ago

8 Replies

NEW FEATURE on this forum

Hi, I have just pinched this from another forum. This looks useful! Support Centre We wanted to draw your attention to a very handy feature of HU. The...

Hi, I have just pinched this from another forum. This looks useful! Support Ce...

MaryF

Administrator•10 years ago

4 Replies

Hughes and UTIs

Is there a connection? I had all the symptoms of one before Christmas( thought it was the first time but now realise had had them before but just thought it...

Is there a connection? I had all the symptoms of one before Christmas( thought ...

panda60

•10 years ago

4 Replies

Back again

Haven't posted for a while because I was getting eye strain and headaches from close work and so very limited on using the computer etc. After seeing 3...

Haven't posted for a while because I was getting eye strain and headaches from c...

panda60

•10 years ago

4 Replies

Update

Just to.let you all know I had erpc yesterday after nearly 3 weeks of waiting for natural miscarriage. Hoping to move on now just want to say thanks for all...

Just to.let you all know I had erpc yesterday after nearly 3 weeks of waiting fo...

sarahlou1801

•10 years ago

6 Replies

Cholesterol......

a recent newbie..........seronegative aps and lupus. Bilateral avn. My most recent set of bloods have shown my cholesterol to be high. I have never had a high...

a recent newbie..........seronegative aps and lupus. Bilateral avn. My most rece...

loublou

•10 years ago

7 Replies

Professor Hughes December 2013 blog

For us, 2013 ended on a bang – strong winds, heavy rain, widespread flooding. Our small schnauzer, Lucy, has not been keen even to put her toes out of the...

For us, 2013 ended on a bang – strong winds, heavy rain, widespread flooding. O...

Hidden

•10 years ago

3 Replies

Hi, new to this community and looking for advice/help with my symptoms.

I was diagnosed hypothyroid in May last year and my first appointment with the Endo was today. She confirmed I had Hashimoto's and also suspects Addison's....

I was diagnosed hypothyroid in May last year and my first appointment with the E...

Hidden

•10 years ago

12 Replies

Hopefully doing my bit for awareness ................

Hi all, hope your all ok during a gloomy January!!! Ive had a call from my opticians today regarding a case study request in to my eye problems, ive just been...

Hi all, hope your all ok during a gloomy January!!! Ive had a call from my opti...

emmaj

•10 years ago

16 Replies

Has anyone had any stomach problems taking Fultium D3 (Colecalciferol)?

I've just been told my Vit D level is 8 which is pretty low and have been put on 800IU capsules 4 a day. I only started taking them a few days ago but my...

I've just been told my Vit D level is 8 which is pretty low and have been put on...

Nat1969

•10 years ago

7 Replies

Does pregnancy cause antibodies to flare?

Hi, I'm trying to decide whether to try for another baby. I have one son conceived naturally, normal pregnancy, c-section. It's taken 4 years to discover a...

Hi, I'm trying to decide whether to try for another baby. I have one son conceiv...

Scootermom

•10 years ago

9 Replies

We are approaching 2,000, members on here!

This forum has really swelled in numbers and it is not far off reaching 2,000 members, very exciting, and just shows how much awareness about the condition...

This forum has really swelled in numbers and it is not far off reaching 2,000 ...

MaryF

Administrator•10 years ago

3 Replies

advice please!

Hi all, I'd like some advice if possible. At the end of my first pregnancy I developed pre-eclampsia and then had eclamptic seizures 12 hours after my daughter...

Hi all, I'd like some advice if possible. At the end of my first pregnancy I dev...

rebeccajaney

•10 years ago

2 Replies

hi

hi all my thyroid levels came bk normal despite syptoms being there!!!!!!!!!!!! any help as gp thinks as no family history of thyroid trouble all ok but to go...

hi all my thyroid levels came bk normal despite syptoms being there!!!!!!!!!!!! ...

rach1081985

•10 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2014

Can anyone recommend an APS specialist in Ireland, Europe?

How do antibiotics affect warfarin contrilled inr?

I have a stroke in Feb 2007, the spec realized have Huges or APS disease. My kids our 15, 20, 23. When should they get tested?

via Hughes Syndrome Foundation Charity

Asprin

TIA - Black Out - Loss of vision - confusion

An informal meet up group East Anglia

I am suffering after a femur fracture and unplanned major surgery with swelling. Is it worse as I have APS ?

Bruises

What medication options are there for aggressive APS ?

Weakness in left arm

Question

What does a positive anti dsdna antibody test mean?

A New Published Article/Magazine Article (via) Hughes Syndrome Foundation

Do you go to London Bridge Hospital?

Is there anyone out there that has had a swollen Lymnode as a result of the APS?

Is Aspirin Enough?

NEW FEATURE on this forum

Hughes and UTIs

Back again

Update

Cholesterol......

Professor Hughes December 2013 blog

Hi, new to this community and looking for advice/help with my symptoms.

Hopefully doing my bit for awareness ................

Has anyone had any stomach problems taking Fultium D3 (Colecalciferol)?

Does pregnancy cause antibodies to flare?

We are approaching 2,000, members on here!

advice please!

hi

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