Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,355 members • 10,542 posts

All posts for January 2014

Chronic lymphocytic leukemia

Hi does anyone know if there is a link between Hughes and Chronic lymphocytic leukemia? I have just found out that my cousin on my mothers side, her aunt and...

Hi does anyone know if there is a link between Hughes and Chronic lymphocytic l...

•10 years ago

Update

Dear everyone, I thought I'd continue to chronicle my pregnancy journey as reading other people's has helped me. I had my 12 week scan today and all is still...

Dear everyone, I thought I'd continue to chronicle my pregnancy journey as read...

•10 years ago

Hi! I am new here, and a norwegian girl with APS. - My english is bad! I hope you understand ;-)

I got diagnosed with APS in 2012, after suffered from 5 DVTs. Last week at work it suddenly felt like someone had hit me in the back of my head. I got...

I got diagnosed with APS in 2012, after suffered from 5 DVTs. Last week at work ...

•10 years ago

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Can you help with a research trial based in London?

The Rivaroxaban in APS (RAPS) trial is now recruting new patients to the trial. Our charity has agreed to help with this important trial as it could finally...

The Rivaroxaban in APS (RAPS) trial is now recruting new patients to the trial. ...

•10 years ago

Hi all, I am new to all this and need your experience. I am going away end of Jan for just a week. But....it is abroad and a 4 1/2 hr

Flight. Am I ok on just my 1 asprin or should I look at an alternative?

Flight. Am I ok on just my 1 asprin or should I look at an alternative?

•10 years ago

IMPORTANT SIGN THIS PLEASE.........

I notice that Kate has said APSnotFAB has left but is well and she will personally pass on any messages to her. I thought it would be nice if we wrote our...

I notice that Kate has said APSnotFAB has left but is well and she will personal...

•10 years ago

My INR is too high !

Hi folks , a bit abt myself; I had a mitral valve replacement 5 year ago and my INR level is 3-3.5, which i have to say i can count on the one hand how many...

Hi folks , a bit abt myself; I had a mitral valve replacement 5 year ago and my ...

•10 years ago

Help understanding results

Hi, I wonder if I could get some help reading my APA panel results? I know they're abnormal and my fertility consultant has advised I'm treated as he would...

Hi, I wonder if I could get some help reading my APA panel results? I know they...

•10 years ago

A New Year and a New Book:

The proposed book on Sero negative Hughes Syndrome will started shortly, this is to earn funds, and also to help patients and doctors, I have had many replies...

The proposed book on Sero negative Hughes Syndrome will started shortly, this is...

Administrator•10 years ago

Just wondering.

Hi, does anyone know if APsnotFaB is ok. I have not seen her on the forum lately. She is a very helpful person. I was wondering if she was ok. ????

Hi, does anyone know if APsnotFaB is ok. I have not seen her on the forum lately...

•10 years ago

hi all

anyone have an ivc filter fitted ive gt mine in 4 life...............jst wondered if any1s had 1 or had 1 removed.... minwes been in nearly 3 yrs now

anyone have an ivc filter fitted ive gt mine in 4 life...............jst wondere...

•10 years ago

APSnotFAB you´ve changed your profile picture!!!!

Has anyone else noticed that APSnotFab has changed her profile picture? Are you looking for a new image for the new year APS? Personally I loved the ´Patsy...

Has anyone else noticed that APSnotFab has changed her profile picture? Are you...

•10 years ago

Pregnancy - when do the 30% fail?

Sorry posted this earlier as a post but prob best as a question After 4 miscarriages including a missed miscarriage at 13.5 weeks (baby died at 10 weeks)...

Sorry posted this earlier as a post but prob best as a question After 4 miscarr...

•10 years ago

Is it possible to be cured?

I heard the case that doctor said to patient that she is cured. First she had high antibodies and strokes. After years the antibodies disappeared and doctor...

I heard the case that doctor said to patient that she is cured. First she had hi...

•10 years ago

Does anyone else have normal systolic blood pressure but always high diastolic at about 90 to 100? I am on irbesarten 150 and amlodipine 5.

I had AF also but warfarin and bisolol 10 has normalised my pulse. Just can't never stand what it means to have high diastolic readings. I have a home monitor...

I had AF also but warfarin and bisolol 10 has normalised my pulse. Just can't ne...

•10 years ago

Can you make Hughes Syndrome worse by having IVF?

I recently discovered that I have antiphospholid antibodies after doing tests for recurrent miscarriages. I have one son who is 5yrs. I'm not sure yet whether...

I recently discovered that I have antiphospholid antibodies after doing tests fo...

•10 years ago

Confused....

I have recently been diagnosed with seronegative APL. All other tests such as anti beta etc also negative. I have had 4 miscarriages and now have bilateral avn...

I have recently been diagnosed with seronegative APL. All other tests such as an...

•10 years ago

Pregnancy and aps

Just an update unfortunately my pregnancy didnt make it past 9 weeks. After several scans with perfect heartbeat and baby and clexane and aspirin my baby died...

Just an update unfortunately my pregnancy didnt make it past 9 weeks. After seve...

•10 years ago

Does anyone have experience of kidney problems and APS please?

I have had blood and protein in my urine and high blood pressure for ages. Little was done as a blood test showed kidney function ok. However overnight I lost...

I have had blood and protein in my urine and high blood pressure for ages. Littl...

•10 years ago

ESA what a joke!

New years eve a letter dropped on my door mat from job centre yet again asking to fill the same form out fit to work form, I had done this in march and was put...

New years eve a letter dropped on my door mat from job centre yet again asking t...

•10 years ago

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