Hughes and UTIs: Is there a connection... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,352 members10,541 posts

Hughes and UTIs

panda60 profile image
4 Replies

Is there a connection? I had all the symptoms of one before Christmas( thought it was the first time but now realise had had them before but just thought it was due to the viral symptoms I get sometimes) so got antibiotics and it came back so had another lot and it has come back again today. Going to speak to my GP later and will take it from there. Luckily I have a good GP.

Written by
panda60 profile image
panda60
To view profiles and participate in discussions please or .
Read more about...
4 Replies
MaryF profile image
MaryFAdministrator

I have had this very same problem for years to the point of making me very unwell. I have been taking a supplement which has greatly helped, which I did also check with my GP and hospital before taking. Cranberry was doing nothing for me, and of course is a no no for those on Warfarin.

However D Mannose has helped me immensely. I notice it has a mention on literature out of St Thomas' Hospital. However as with everything don't embark without input of your consultant/ and or GP. When I last checked there did not seem to be any problems with using this alongside anti coagulation, however if I was on this, rather than just twice daily Aspirin I would be double checking with all involved in my care. So far I have cut down my repeat infections by over three quarters, I was getting one every three weeks! guysandstthomas.nhs.uk/reso...

MaryF x

Cherrydi profile image
Cherrydi in reply to MaryF

Mary I use D Mannose and couldn't be without it, Not only have I got APS I also have a total bladder prolapse, so don't empty my bladder completely (Not possible) so this made UTI's a real problem, plus anti-biotic allergy and interactions with Warfarin, I have personally found D Mannose the answer I take it daily as a preventative 1-2 doses, and then when I feel I have an infection coming I do the suggested dose, As you say though EVERYONE should check first with those treating their APS and other issues first. x

MaryF profile image
MaryFAdministrator in reply to Cherrydi

Yes I dose in a fairly similar manner, also checked with the GP who manages my LDN, and I did also check with St T's. MaryF x

Cherrydi profile image
Cherrydi in reply to MaryF

I am so glad it has helped you, I can't be without it, I know some brands are better than others, I won't state any here obviously, I will PM you about which one I Use, and see if it is the same as yours. x

You may also like...

To Hughes or not to Hughes

case and had letters etc from previous hospital visits, in case they had lost my notes again, and...

Catastrophic Hughes!!

my kidney that was compromised. I lost lots of blood and had to be transfused and to have my...

Macrobid for UTI? Safe?

Godmother who is a retired RN said that UTI symptoms do not come and go like mine are and thinks...

Hughes Syndrome and menstruation

appetite and tingly hands and feet. I’m due for for my first haematology consultation in September...

New to Hughes Syndrome

starting warafin I got better. I could hardly get out of bed and was really not all there before...