Back again: Haven't posted for a while... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,349 members10,537 posts

Back again

panda60 profile image
4 Replies

Haven't posted for a while because I was getting eye strain and headaches from close work and so very limited on using the computer etc. After seeing 3 different consultants it was discovered that my eyes don't converge properly so I have been given exercises and am waiting for an appointment with an orthoptist to try out prisms on my reading glasses. It has been very difficult not being able to read much (my main interest) or do my tapestry. But on a positive note it has been a relief to have such a reduction in my headaches and I have discovered a pleasure in audiobooks.

It doesn't appear to be Hughes related - can happen to anyone apparently but the consultant said she does find this in people with cfs.

Written by
panda60 profile image
panda60
To view profiles and participate in discussions please or .
4 Replies
MaryF profile image
MaryFAdministrator

Hi there, glad you have had some good medical detective work going on to help with the headaches. Audio books are great! MaryF x

panda60 profile image
panda60 in reply to MaryF

Thanks Mary. X

Manofmendip profile image
Manofmendip

Hi, A Mary said we are pleased that you are getting some good help. Dave

panda60 profile image
panda60 in reply to Manofmendip

Thanks. Eye exercises have helped a lot so hopefully prisms will get me reading again.

You may also like...

All put back together again.

Dragging myself up!! AGAIN!!!!

see consultant, had to see registrar as consultant running late, so blank looks and glazed eyes when

Back to the machines

staffed so i don't mind {no pun intended Ha } i have been in there at 10:30 on a sunday night once...

knew inr was low again!

I have been extra clumsy, slurring, right hand/arm very cold, slow, etc. I've been to the gym

Doing the rounds of doctors again.