any one else get this?: sometimes my... - Hughes Syndrome A...

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any one else get this?

donnabrain profile image
7 Replies

sometimes my upper eyelids swell so much that they bury my lower lid and half my eyes,this is not painfull or anything, just makes me look weird, its just that I have noticed that it happens when I am feeling particularly rough with generalised pain and fatigue and wondered if it is some sort of "sign" that something else is going on,been meaning to ask gp but sure they are starting to think i,m just losing the plot and didnt want to mention such a vague and also trivial symptom unless it may be important

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donnabrain profile image
donnabrain
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donnabrain profile image
donnabrain

thank you

MaryF profile image
MaryFAdministrator

Hi there, the thryoid being a bit out can cause eye lid swelling in some cases, and this can cause problems with swelling of eye lids. Mary F x

I get a lumpy feeling especially in my right eye lid, but there is nothing there. It sort of feels bruised rather than painful, it doesn't really swell, but it does make me look about 10 years older. It is a lot more common when I'm stressed, right now its at

Its worst - but like you, I feel I have too many other problems to deal with this. Don't know about you, but I've been thinking over the last few days that when I'm having trouble else where- you know, having to really focus in work when your fogy headed and your trying to ignor some pain, i might open my eyes too wide and stop blinking. It might make eyes a bit more sensitive to the environment. g

Mrijana profile image
Mrijana

I also experience this and my eyelids can also look bruised . It happens before and during a relapse. This sign enables my family to recognise when a relapse is about to happen. I have mentioned it at my appointments with Dr Khamashta and I will talk to him about it again at my next appointment

donnabrain profile image
donnabrain in reply toMrijana

interesting

Willa profile image
Willa

Please see an ophthalmologist. Ophthalmology is the branch of medicine that deals with the anatomy, physiology and diseases of the eye You may have optic neuritis.

donnabrain profile image
donnabrain

thank you , eye test due soon

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