Losing limbs: Hi all I lost my left... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Losing limbs

Dann profile image
Dann
6 Replies

Hi all

I lost my left leg below the knee 7 years ago due to micro clots in my muscles which caused a disease seen in trauma cases called compartment syndrome ( basically your muscles swell due to insult or injury and the pressure in your legs rises blocking blood supply to the foot , then your muscle breakdown and die )

I also developed the same condition in my right leg a few years later fortunately my limb was saved after major reconstructive surgery

Has any one else lost a limb due to APS ??

Dan

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Dann profile image
Dann
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MaryF profile image
MaryFAdministrator

Hi there, I have not had this happen, but I can assure you that there are a few people on this site you certainly have had so, I am sure they will let you know. Sorry about your leg! Mary F x

Dann profile image
Dann

No need to be sorry Mary I have a nice carbon fibre and titanium one now much better looking than the old one ??

MaryF profile image
MaryFAdministrator in reply to Dann

Ah the next Olympics! MF x

Dann profile image
Dann

God no I can barely climb two steps if they made sleeping due to fatigue an Olympic sport there would be gold medals from me for sure

MaryF profile image
MaryFAdministrator in reply to Dann

Yes - can I have the bronze medal! MF x

stillwaiting profile image
stillwaiting in reply to MaryF

And I'd be a good bet for silver :)

I have not lost a limb to APS but I have probs with my legs due, I expect, to APS and the pain is bad

Newly diagnosed, studying this site I am forever seeing why I have the stuff I have. It is like putting together a jigsaw - my ill health stuff is beginning, finally, to make some sense.

Lynn .x.

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