hi everyone .whot was the hughes meeting like? is there going to be one next year? thanks.stacey
meeting: hi everyone .whot was the... - Hughes Syndrome A...
meeting
Hi hon,
Had a lovely day, it helps so much meeting up with other patients and to have doctors in the room who believe in us and helping with future patient care. To use a friend Hazels saying, "knowledge is power" ! So true!
Yes, should be one next year too.
Hope you doing ok today,
Take care gentle hugs love Sheena xxxxx
hi sounds like it was a good day. was there a lot of ppl there? im fine thanks just batling on!! are u keeping well?
Hi there - yes it was the busiest one yet with over 140 people there. Thanks to everyone who filled out the feedback forms - seems they like the venue after all, I was considering trying to find somewhere else, but better the devil you know!
Hi there, this is an annual event inside St Thomas' Hospital, there will be a film available soon, so that you can watch it. Mary F x
There is no film only audio
Great question,i got the minutes booklet from last year st Thomases meeting.look forward seeing video from this year one little hint sound wasnt best anyway they can improve it this year be great.