Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for April 2013

Is it worth me asking for a trial of heparin?

I was diagnosed at the beginning of January and started on clopidogrel on the basis of bloods, miscarriages, headaches, memory loss etc at first the...

I was diagnosed at the beginning of January and started on clopidogrel on the ba...

Paleosooze

•11 years ago

16 Replies

Fed up

hi, will try to condense this,ten years ago started experiencing both joint and muscle pain and fatigue,gp said nothing wrong, then started falling asleep all...

hi, will try to condense this,ten years ago started experiencing both joint and ...

donnabrain

•11 years ago

10 Replies

how much does it cost to get a private appt at the london bridge hospital

donnabrain

•11 years ago

2 Replies

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INR

Had my INR done today. Was 5.9 even my INR nurse reckons something is wrong. Still feeling rubbish but she's managed to get me an appointment to see my family...

Had my INR done today. Was 5.9 even my INR nurse reckons something is wrong. Sti...

Charli84

•11 years ago

10 Replies

Should I go to London Bridge to see the Prof?

I have had 2 weak positive for LA at my local hospital.Went to St Thomas blood test clear MRI no damage except MS it was the Neurologist who spotted the livedo...

I have had 2 weak positive for LA at my local hospital.Went to St Thomas blood t...

42Lilac

•11 years ago

16 Replies

going off coumadin??

my doc wants me to go off coumadin and go on plavix..i am really afraid ..has anyone else been on coumadin and switched to plavix..my body has been having a...

my doc wants me to go off coumadin and go on plavix..i am really afraid ..has an...

happee1

•11 years ago

5 Replies

KIDNEYS and APS and SLE Lupus Has anyone had a low GFR after it being good for years

I have had lowish GFR results, never 90 like healthy people, but today found my GFR is 53 which is a concern as that is stage 3 according to tables I have...

I have had lowish GFR results, never 90 like healthy people, but today found my ...

Cherrydi

•11 years ago

22 Replies

Anyone else sick of feeling horrible?

I feel constantly drained. Bad back for three weeks (doc gave me exercises to do without even an examination). On the 5th week of menstruation. Had shooting...

I feel constantly drained. Bad back for three weeks (doc gave me exercises to do...

BobbieAnne

•11 years ago

10 Replies

BOSTON MARATHON TERRORISM ATTACK

My sincere condolences to the family and friends of the two Boston Marathon runners killed in the terrorism attack at the Boston Marathon finish line today....

My sincere condolences to the family and friends of the two Boston Marathon runn...

CanaryDiamond10

•11 years ago

11 Replies

Bleeding on clopidogrel - what's normal?

Hi all I was diagnosed at the beginning of the year and have been on clopidogrel since. I've noticed that when I get little nicks, like grazing myself (I'm v...

Hi all I was diagnosed at the beginning of the year and have been on clopidogre...

Paleosooze

•11 years ago

6 Replies

Appointment tomorrow

Hello :) My speech was so bad today I rang the hospital to ask if they had had any cancellations for rheumatology clinc and they said yes - tomorrow!! So I...

Hello :) My speech was so bad today I rang the hospital to ask if they had had ...

stillwaiting

•11 years ago

10 Replies

A minute ago BBC Radio Bristol phoned me to talk about my stroke on air

Hi I mentioned to the BBC Radio Bristol about Hughes Syndrome in the John Darvall programme. They were doing a program about young stroke survivors relating...

Hi I mentioned to the BBC Radio Bristol about Hughes Syndrome in the John Darval...

Danimgw

•11 years ago

8 Replies

Does anyone know the nearest APS specialist to LINCOLN Lincolnshire

Hello all I am new to the site, I have APS and Protein S Deficiency, Lupus and numerous other illnesses. I used to go to St Thomas, but now it is too far for...

Hello all I am new to the site, I have APS and Protein S Deficiency, Lupus and n...

Cherrydi

•11 years ago

14 Replies

I had a routine eye test yesterday, and was told I have early stages of macular degeneration, has anyone else been diagnosed with this?

I am almost 58 so not that old!

Ekiddle

•11 years ago

10 Replies

Branch Retinal Vein Occlusion

Wondering if anyone else has had this? In November last year I went in for a eye exam to check on status of a condition known as Fuchs, a genetic condition...

Wondering if anyone else has had this? In November last year I went in for a eye...

jcgc

•11 years ago

3 Replies

Can anyone help me

I was unwell last night heart racing cold sweats iv just been diagnosed with aps not on medication yet.. Today I have spent all day feeling very unwell lack of...

I was unwell last night heart racing cold sweats iv just been diagnosed with aps...

Susie20

•11 years ago

8 Replies

Can any body tell me.....

Can anyone tell me if checking for sticky blood is the same as checking for the clotting of the blood ??? I had a blood test carried out some years ago for...

Can anyone tell me if checking for sticky blood is the same as checking for the ...

Jillymo

•11 years ago

18 Replies

finally!!!

hi all, i finally go my app to see romy specilist on the 7th june.nearly 4months after been diagnoed. could anyone tell me whot to ask and say?, whot doas a...

hi all, i finally go my app to see romy specilist on the 7th june.nearly 4months...

chapman

•11 years ago

15 Replies

How much more

Hi guys I have Lupus Sjogren's Hughes Syndrome and lots more last month I was DX with C.O.P.D I am to tired to write it in full it's a lung disease anyone else...

Hi guys I have Lupus Sjogren's Hughes Syndrome and lots more last month I was DX...

taffydaffy

•11 years ago

5 Replies

ANBODY OUT THERE

ANYBODY IN SOUTH WALES???? I WOULD LIKE 2 SET UP SUPPORT GROUP ANY1 WANT 2 HELP ME??

ANYBODY IN SOUTH WALES???? I WOULD LIKE 2 SET UP SUPPORT GROUP ANY1 WANT 2 HELP...

rach1081985

•11 years ago

7 Replies

hi all

any1 out there in there 20s n suffering with aps???? I HAV HAD 2 MAJOR CLOTS IN MY LUNGS N HAVE IVC FILTER FITTED,....... I HAD A BABY AT 33 WKS 2 YRS AGO.DUE...

any1 out there in there 20s n suffering with aps???? I HAV HAD 2 MAJOR CLOTS IN ...

rach1081985

•11 years ago

3 Replies

Question about Splinter hemmorages

I know splinter hemmorages are a feature of Hughes syndrome and try are clots that appear in the nail bed as vertical lines but I'm not sure exactly what they...

I know splinter hemmorages are a feature of Hughes syndrome and try are clots th...

SassyOne

•11 years ago

3 Replies

Fed up of feeling this way.

I'm so emotional today. This week I've just felt terrible. I'm so dizzy and I'm finding it hard to even look out of my eyes. I just want to sleep. Looki after...

I'm so emotional today. This week I've just felt terrible. I'm so dizzy and I'm ...

Charli84

•11 years ago

7 Replies

Professor Graham Hughes' March blog

Another record! The coldest March for 50 years! It's nearly a year since the UK's drought warning and it hasn't stopped raining since. Let's hope Easter brings...

Another record! The coldest March for 50 years! It's nearly a year since the UK'...

Hidden

•11 years ago

5 Replies

Un expained back pain - no treatment recommended from doctor. Could Hughes be the cause?

jean48

•11 years ago

9 Replies

I'm turning the wrong corner. I recover from back pain and then I move onto a sore throat and so on. Anyone else have this health issue?

jean48

•11 years ago

8 Replies

The Fog

The Fog The fog rolls in, but others can not see, It gets thick and heavy, And it consumes only me. I can't think clearly, I have no concentration,...

The Fog The fog rolls in, but others can not see, It gets thick and heavy, ...

SassyOne

•11 years ago

14 Replies

Where did you go?

I am no longer receiving email links to latest blogs and questions. How come?

GinaD

•11 years ago

5 Replies

Quick question

Hi. Can anyone tell me if with hughes they suffer or have ever suffered from quick stabbing pains in hands or legs or arms which last a second or to for a few...

Hi. Can anyone tell me if with hughes they suffer or have ever suffered from qui...

Missdaisy

•11 years ago

12 Replies

Bad day, I ache from head to foot, headache, tired & very tearful. My words are muddled & keep forgetting things !!! feel really low,

feel really low, I am on warfarin for a pre existing heart problem for the last 13 years, paracetomal do not help aches, can anyone recommend any thing.feel...

feel really low, I am on warfarin for a pre existing heart problem for the last ...

smellyfootsies

•11 years ago

6 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2013

Is it worth me asking for a trial of heparin?

Fed up

how much does it cost to get a private appt at the london bridge hospital

INR

Should I go to London Bridge to see the Prof?

going off coumadin??

KIDNEYS and APS and SLE Lupus Has anyone had a low GFR after it being good for years

Anyone else sick of feeling horrible?

BOSTON MARATHON TERRORISM ATTACK

Bleeding on clopidogrel - what's normal?

Appointment tomorrow

A minute ago BBC Radio Bristol phoned me to talk about my stroke on air

Does anyone know the nearest APS specialist to LINCOLN Lincolnshire

I had a routine eye test yesterday, and was told I have early stages of macular degeneration, has anyone else been diagnosed with this?

Branch Retinal Vein Occlusion

Can anyone help me

Can any body tell me.....

finally!!!

How much more

ANBODY OUT THERE

hi all

Question about Splinter hemmorages

Fed up of feeling this way.

Professor Graham Hughes' March blog

Un expained back pain - no treatment recommended from doctor. Could Hughes be the cause?

I'm turning the wrong corner. I recover from back pain and then I move onto a sore throat and so on. Anyone else have this health issue?

The Fog

Where did you go?

Quick question

Bad day, I ache from head to foot, headache, tired & very tearful. My words are muddled & keep forgetting things !!! feel really low,

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