Sticky Blood-Hughes Syndrome Support
8,090 members8,327 posts

Does anyone know the nearest APS specialist to LINCOLN Lincolnshire

Hello all I am new to the site, I have APS and Protein S Deficiency, Lupus and numerous other illnesses. I used to go to St Thomas, but now it is too far for me to travel as I am 99.9% housebound, I wonder if anyone knows the closest consultant to Lincoln, as I have worsened since 2010 and don't see anyone for my APS and Protein S Deficiency, Lupus, at all, I just have my INR checked weekly, using my own machine, and dosing by the local INR clinic.

Many thanks to you all

14 Replies
oldestnewest

Hi there, firstly do please get hold of any useful paperwork from St Thomas' either via your GP or from the department you were with, and please see our "Pinned Posts" where there is a list of medical consultants, and you can find your nearest one!

Mary F x

Reply

Many thanks sadly all my notes were lost several years ago, and they started new ones, but I only got their once, then moved to Lincs, I used to see Prof Hughes and Beverely Hunt, but years of notes are now no more.

Reply

your new specialist if GP refers, may be able to request them from archives, St Thomas' - it is not unheard of. Best of luck. Mary F x

Reply

Dr Bethan Myers practices at the Lincoln County Hospital.

Our specialists list is compiled on recommendation from other patients and Dr Myers is happy to see new APS patients.

Reply

Many thanks being referred

Reply

That is lovely thank you, will ask my GP if he is happy to refer me, I was diagnosed in 1992 but not been seen by anyone for approx. 8-9 years, I am now getting worse, and feel I need to see someone.

Reply

I'm going to be asking for a referral to her when I see my GP next week- good luck!

Reply

All the best .. I am being referred

Reply

Great news :)

Reply

Thank you I have also had a low GFR today after 8-9 years of no treatment for my Lupus APS and Protein S problems, I think it is time I got some expert help !!!!

Reply

Seeing my new specialist in Lincoln Today, thanks to help here by finding a specialist in my area ! Thank you SO much for that, haven't seen anyone since St Thomas Lupus Clinic about 10 years ago ... Need to see someone who knows about APS and PSD etc as it is so important to get the support when we need it so Thank You to all of you! who pointed me in the right direction. x

Reply

Hope it went well with Dr Myers Cherry? Can you give any feedback for other patients?

Reply

I was really happy to see Dr Myers she was very good, and I would recommend her to anyone, I go back to see her in just over 8 weeks for blood tests results etc. So we can then take things from there. I am so pleased I am now under her, at last I don't feel so alone with my blood clotting illnesses, so my feedback would be excellent.

Reply

Brilliant news - I do like to know how people get on with the APS specialists we've listed online, so am really pleased Bethan Myers can be recommended in the future :)

Reply

You may also like...