going off coumadin??: my doc wants me... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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going off coumadin??

happee1 profile image
5 Replies

my doc wants me to go off coumadin and go on plavix..i am really afraid ..has anyone else been on coumadin and switched to plavix..my body has been having a hard time adjusting all of a sudden..i am either very high or very low..didn't have this problem before...i haven't done anything different except get older..i am allergic to plaquinal....thanks in advance

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happee1
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5 Replies
Manofmendip profile image
Manofmendip

Hi

If it was me I would want a second opinin before agreeing to that. Plavix doesn't work in the same was as Warfarin. The usual alternative to Warfarin is Low Molecular Weight Heparin.

Best wishes.

Dave

dutchess profile image
dutchess

Def get a second opinion ,since i came off warfarin my health has gone down hill , been fighting for 4 months to get it back .

GinaD profile image
GinaD

I was on plavix just before my diagnosis was tweaked from essential thrombocytosis to Hughes The plavix did not stop the strokes. So I too would get a 2nd opinion.

happee1 profile image
happee1

thank you for your help..he is the leading doctor in my state..there isn't anyone that knows as much about hughes as he does...he has written many papers and gone to numerous medical conferences...he would be the one i went to for a second opinion.....he is sending me for another mri and aps blood workup to make sure i am ok to change..but i am scarred...the only other doctor that would be his equal has retired...sigh

Salty profile image
Salty

What was the indication for the warfarin in the first place? Also what blood test is he repeating. Prof Hughes and my local hematologist in the US both feel no reason to ever repeat the aPL testing once it has been positive twice. The antibodies can wax and wane and if it later comes back negative that doesn't mean your APS has gone away--unfortunately. Can you get a second opinion elsewhere?

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