How much more: Hi guys I have Lupus... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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How much more

taffydaffy profile image
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Hi guys I have Lupus Sjogren's Hughes Syndrome and lots more last month I was DX with C.O.P.D I am to tired to write it in full it's a lung disease anyone else got it x

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taffydaffy profile image
taffydaffy
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5 Replies

So they say, yes.

MaryF profile image
MaryFAdministrator

Out of interest, what tests did they do, I had lung function tests 5 years ago, and was fine, but have had two back to back chest infections, and been left with chronic episodes of coughing and some wheezing and apparently have to have more again. I am presuming that for me it was just having one infection, then fairly swiftly afterwards getting flu which triggered another chest infection. I hope I am clear of it, but lupus and lungs and this have been mentioned. I think I don't have, but would still like to know. I hope you feel better soon, sorry if you are feeling bad. Mary F x

taffydaffy profile image
taffydaffy

Hi Mary

Last month I had a lung function test and the guy that did it said that I had congestion and people with Lupus aften get this when I saw the specialist last week he confirmed that I had COPD and I now have to use a pump but the funny thing is I have never had a bad chest I went to my G.P as I could not do a deep breath makes you think x

MaryF profile image
MaryFAdministrator in reply to taffydaffy

Ah, useful, and I am glad they picked it up and are keeping an eye. I hope they can do something to ease it for you. Mary F x

GinaD profile image
GinaD

Sorry to read this. Stay strong. For what it's worth, we're all rooting for you.

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