Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for April 2013

Feeling Blue :(

I have Lupus with secondary APS and after nearly five years of suffering with excruciating pain in my legs, bleeding in my joints, strokes, TIA’s etc etc I...

I have Lupus with secondary APS and after nearly five years of suffering with ex...

InSpain

•11 years ago

24 Replies

Exercise

I want to start working out properly so I look nice in my wedding dress in August. I never have any motivation these days an when I was looking up things on...

I want to start working out properly so I look nice in my wedding dress in Augus...

Charli84

•11 years ago

18 Replies

Extractions and dentures

well i went to the hematologist today because i broke my tooth and it was infected last week. He spoke with my drs and i have to go friday to have it pulled. I...

well i went to the hematologist today because i broke my tooth and it was infect...

lovemyheart

•11 years ago

12 Replies

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How long does it take for clexane to work?

Sure this has been asked and answered on here before, sorry, but can't find in search. I'm on a 3-week trial of clexane injections. I'm told that if it's...

Sure this has been asked and answered on here before, sorry, but can't find in s...

Coppernob

•11 years ago

8 Replies

Pain in arms and legs.

Can anyone relate to this. I have sero negative hughes and was started on Plaquenil (every other day) at my last appt at St T's in October. I noticed it was...

Can anyone relate to this. I have sero negative hughes and was started on Plaque...

huds

•11 years ago

4 Replies

Appeal for Scottish case study

We have an appeal from a Scottish journalist - if anyone can help and is happy to do a telephone interview, please email Laura. Here is her messages: I'm...

We have an appeal from a Scottish journalist - if anyone can help and is happy t...

Hidden

•11 years ago

6 Replies

medication

hi as ur proberly awere, iv had a trial of amitriptyline but made my head aces worce.went to docter and she putting me on epilim crona 200mg at nite. iv read...

hi as ur proberly awere, iv had a trial of amitriptyline but made my head aces w...

chapman

•11 years ago

1 Reply

Anticardiolipin ????

Hi I had results back from miscarriage test and it says equivocal anticardiolipin igm ??? Tried googling but confuses me can anyone help ?

Hi I had results back from miscarriage test and it says equivocal anticardiolipi...

Cakemad

•11 years ago

2 Replies

Can you give blood with APS?

missmolly

•11 years ago

38 Replies

I have just been tested positive for Hughes syndrome

I am 20 years old and I have had 3 miscarriages all before 7 weeks they took blood samples and yesterday I had a letter saying that I'm positive or this...

I am 20 years old and I have had 3 miscarriages all before 7 weeks they took blo...

Susie20

•11 years ago

9 Replies

I have just been told I am positive for this condition and there running tests to see how bad it is..

I have had 3 miscarriages and I feel tired a lot of the time being a mum to a 3 year old working and I also go to college.. Advice please need my mind putting...

I have had 3 miscarriages and I feel tired a lot of the time being a mum to a 3 ...

Susie20

•11 years ago

10 Replies

Paying for prescriptions

Hi quick question about being on so many meds. How does everyone pay for them as I'm finding it really expensive. I'm on warfarin for life and I obviously need...

Hi quick question about being on so many meds. How does everyone pay for them as...

Charli84

•11 years ago

13 Replies

Not my Usual Self at the Moment

I am having a bit of a bad time at the moment. Feel dizzy and sickly most of the time and have no idea what is going on inside my brain. Yesterday I took my...

I am having a bit of a bad time at the moment. Feel dizzy and sickly most of the...

Glitterwitch

•11 years ago

11 Replies

How many with Hughes syndrome are also positive for heliobacter pylori?

Diagnosed with APS in Jan. i am trying to build my knowledge of the disease and treatments, I keep finding facts related to others but not tied to hughes...

Diagnosed with APS in Jan. i am trying to build my knowledge of the disease and ...

Kathy829

•11 years ago

1 Reply

Does Hughes Always get worse?

I have been newly diagnosed after three miscarriages. Apart from a few headaches when I was in my teens this seems to be all my symptoms. My mum has had...

I have been newly diagnosed after three miscarriages. Apart from a few headaches...

starships

•11 years ago

10 Replies

Feeling a bit rough.

Today I feel terrible. I woke up and I felt like my head was spinning then a friend of mine that I haven't seen for 13 years came over for a cuppa and I didn't...

Today I feel terrible. I woke up and I felt like my head was spinning then a fri...

Charli84

•11 years ago

14 Replies

Lumps

Are people with Hughes Syndrome more prone to lumps and bumps throughout their body and on the outside of their body?

Are people with Hughes Syndrome more prone to lumps and bumps throughout their b...

katrinahug03

•11 years ago

4 Replies

pregnancy update

hello everyone. sorry I haven't posted any updates recently..... time has just passed so quickly. the last couple of weeks have been interesting. After an...

hello everyone. sorry I haven't posted any updates recently..... time has just ...

kateb81

•11 years ago

13 Replies

Is a diet low in Vitamin K needed when on aspirin only or does this just affect those on warfarin?

I found the info sheets for low, medium and high vit K foods on this site and also found to my dismay that my diet is full of the high stuff, lots of...

I found the info sheets for low, medium and high vit K foods on this site and al...

PepperT

•11 years ago

7 Replies

will thay or wont thay????

hi everyone. after having bad headace for days everytime i moved.i finaly got some time off.so went into council office and asked for a blue badge, she also...

hi everyone. after having bad headace for days everytime i moved.i finaly got so...

chapman

•11 years ago

2 Replies

Inr

Tested my inr on Friday and it was 6.8. To be on the safe side had it tested against clinic machine and it was right. I hadn't eaten for three days and...

Tested my inr on Friday and it was 6.8. To be on the safe side had it tested ag...

panda60

•11 years ago

1 Reply

how long does it take for clexane to improve MS like symptoms ?

dutchess

•11 years ago

3 Replies

Does anyone suffer with mouth ulcers, have had some for 3 weeks now

NBtired

•11 years ago

6 Replies

Curiosity

Can you take the morning after pill if you have HS? I know the contraceptive pill is a no no, but i am just curious to know if the morning after pill is also a...

Can you take the morning after pill if you have HS? I know the contraceptive pil...

katrinahug03

•11 years ago

8 Replies

New here

Hello - this is my first visit here - I started reading last week. I have been ill for many years - lost 2 babies at 17 weeks each nearly 20 years ago. Ten...

Hello - this is my first visit here - I started reading last week. I have been...

stillwaiting

•11 years ago

4 Replies

Facial spasms and eye blinking

Hi all. For a few years before my diagnosis with APS, I was having symptoms of one of my eyelids feeling droopy off and on. I mentioned it to my then...

Hi all. For a few years before my diagnosis with APS, I was having symptoms of ...

Willa

•11 years ago

5 Replies

"Say No to Shingles Vaccine: Boost immunity naturally".

Yesterday, we had discussion of whether or not to take the shingles vaccine. For our hosts in the UK, just what is the shingels vaccine? I supplied some links...

Yesterday, we had discussion of whether or not to take the shingles vaccine. For...

CanaryDiamond10

•11 years ago

14 Replies

Work and Hughes.

Hi sorry me again. I was just wondering how many people with his condition works? I have just got my first job since I've been diognosed and now my...

Hi sorry me again. I was just wondering how many people with his condition w...

Charli84

•11 years ago

25 Replies

Please can anyone recommend a good Rheumatologist in any of the following hospitals:-

in any of the following hospitals:- Leeds Chapel Allerton, York District, or Malton Community Hospital? I have to make my own appointment to see someone...

in any of the following hospitals:- Leeds Chapel Allerton, York District, or ...

Everdean

•11 years ago

13 Replies

Was it a TIA

Last night I had funny turn. I have them every now and again and just put them down to 'one of those things' but now we're considering I might have Hughes, I...

Last night I had funny turn. I have them every now and again and just put them d...

Cshimmon

•11 years ago

4 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2013

Feeling Blue :(

Exercise

Extractions and dentures

How long does it take for clexane to work?

Pain in arms and legs.

Appeal for Scottish case study

medication

Anticardiolipin ????

Can you give blood with APS?

I have just been tested positive for Hughes syndrome

I have just been told I am positive for this condition and there running tests to see how bad it is..

Paying for prescriptions

Not my Usual Self at the Moment

How many with Hughes syndrome are also positive for heliobacter pylori?

Does Hughes Always get worse?

Feeling a bit rough.

Lumps

pregnancy update

Is a diet low in Vitamin K needed when on aspirin only or does this just affect those on warfarin?

will thay or wont thay????

Inr

how long does it take for clexane to improve MS like symptoms ?

Does anyone suffer with mouth ulcers, have had some for 3 weeks now

Curiosity

New here

Facial spasms and eye blinking

"Say No to Shingles Vaccine: Boost immunity naturally".

Work and Hughes.

Please can anyone recommend a good Rheumatologist in any of the following hospitals:-

Was it a TIA

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