Aches and pains?: I've always suffered... - Hughes Syndrome A...

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Aches and pains?

Maybells profile image
8 Replies

I've always suffered with various aches, sometimes they're sharp sudden pains lasting a few seconds or continuous dull aches. I'm getting more and more of the sharp pains in my arms, usually in or around the same place. I was wondering what type of aches and pains others experience?

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Maybells profile image
Maybells
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8 Replies
Manofmendip profile image
Manofmendip

Hi Maybells.

I get similar aches and pains to you. I get sharp ones in the sides of my head that last seconds and I get like nervey, sensitive pains on various places on my torso.

Best wishes.

Dave

Maybells profile image
Maybells in reply toManofmendip

Do you know why it happens? I experience these pains on/off throughout the day.

Manofmendip profile image
Manofmendip in reply toMaybells

No I wish I did.

CanaryDiamond10 profile image
CanaryDiamond10

Hi Maybells: You know how people claim to see an aura around other people? I felt like I had an aura of pain, where I would flinch at the anticipation of touch, it would surround every part of my physical body. It was constant, unrelenting, never ending pain. The neurologists suspected it was CNS vasculitus nerve damage. Thankfully, right about that time the neurologist that I had and I did not agree on treatment and I fired him. I remember that very same day my new rheumatologist agreed to move up my appointment to "now" and she had a fentanyl patch on me which she escalated to its maximum within a month. I couldn't even remember what it was like not to be in pain until she placed me on this drug. It then gave me the power for aquatherapy, then physical therapy, mental therapy, eating correctly and all of it did wonders for my mental attitude. She has been handling my case, MY WAY which is to stay on aspirin only and avoid blood thinners as long as is possible for my case. She agrees we can learn so much from others. Right now on the scale of 1-10 of APS patients, it probably donates 25% of my symptoms and pain. Fibromyalgia donates a good 30%, (CNS nerve damage, vasculitus and osteoarthritis the rest. Separating the pain is often the hardest thing for me to do. It's practically impossible to pinpoint which diagnoses is screaming the loudest that day. The symtpoms are similar. I often end up thinking who cares where it came from; just stop it. And I make it my job that day to distract myself from the pain. Watch your favorite movie (one of mine is Kill Bill Volume I and II). Get to brain games like a puzzle. I always have a puzzle laying half done on a table to trap people. True, mostly me but you'd be surprised how many people just cant pass by a puzzle!

I would mention the pains in the arm on your next regular visit. Also I would mention head pain in the pattern you seem to get. Then your doctor can give you a little help with pain management. The weather sometimes has a great effect on arthritis victims. Just a few points in the pressure system and it's an ouch of a day. I hope you are pain free soon.

Good luck. Warm wishes, smiles and prayers,

CanaryDiamond

CanaryDiamond10 profile image
CanaryDiamond10 in reply toCanaryDiamond10

I'm sorry, I meant no "prescription blood thinners" and to stay on aspirin alone.

Maybells profile image
Maybells

Thanks for your replies :) I had a really bizarre and quite scary episode last night after experiencing simultaneous sharp pains in various places, the most bizarre in my rib cage and the worst at the top of my head. I felt that my body was under attack. I intend to call the doc this morning, however since I have only recently been diagnosed and waiting for a referral, I'm not sure that he'll be able to shed any light on it.

GinaD profile image
GinaD

Maybells, you might look for an inflammatory trigger in your environment -- possibly a food. My pain experience, though not as intense as others described here -- is that some trigger is stoking my inflammation fire, which then burns into or through some already weak or damaged area -- like a joint. Once I identify the trigger(s) and dial back the inflammation I can learn how to deal with the possibly permanent damage the inflammation has caused.

Good luck.

silverwind12 profile image
silverwind12

I started having constant migratory pain after stressing both wrists about 4 weeks ago. Nothing but time seems to help so I have great sympathy for you. I hope you have someone in your area that is into pain management. You might also check with anyone into holistic medicine. A friend told me that caffeine sets her pain off and that she also found she has a sensitivity to gluten that sets pain off. She tried eating brown rice and chicken and then adding one new thing each day to see what made her hurt then cutting it out of her diet. My mother had to do this 40 years ago when she had constant hive. Good luck but as I know, just about anything is worth trying.

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