Chest pains

[noodlesrita123]

People who have a PE does anyone still get chest pains if so what do you do? Xx

[daisyd]

Are you still having chest pains today? How long do they last ? Are you on an anticoagulants ? have you problems with your breathing ? Have you got a cough ? Temperature, can't think of anymore questions, but chest pain can be several things

If I had chest pains I would see a Doctor

Hope you feel better soon

[noodlesrita123]

I have chest pains on and off haven't got them today. They can last up to 6hours. Yeh been on warfarin since may on it long term now as have aps and lupus also a heart condition. Sometimes I can't breath. Don't have cough or a temp. Wen I have been to hospital they can't ever get blood 6 times they try so come away battered and bruised.

[Annslack]

yes I get chest pains and it is a common symptom of this illness and can be caused by poor blood flow in the very small arteries around the heart. You do need to have it investigated though rather than assume that is what it is.It is really useful to note down when you get it and how long it lasts and how you would describe the pain. When I am not well I have a feeling of pressure in my chest. One patient describes it as feeling like an elephant is sitting on her chest. I also get sharp stabbing pain and then spasm type pains which can be in different areas of my chest. I manage it now by resting and taking about a teaspoon of cayenne pepper tincture usually in hot chocolate. Cayenne consumption is linked with lower rates of thrombosis and has positive effects on circulation.It also acts as a gentle vaso. dilator . There are lots of possible causes of chest pain so its best to discuss it with your doctor. Let us know how you get on.Ann

[Mair in reply to Annslack]

Not glad to hear others have chest pains, but relieved that I'm not the only one. I was getting intense, knock me off my feet sharp stabbing chest pains and spasms. Since starting on Plaquenil its only happened once, but I don't know if it's the med or if I've just been lucky.

I have no cardiac disease (except for a couple of slightly funky valves) and have not had pulmonary emboli, only a stroke and several tia's.

If I have the pain again I'm definitely going to try your remedy of cayenne pepper and hot chocolate. Great suggestion.

[noodlesrita123]

Thanks Hun ATM it's driving me mad as its not my heart they has got better nice having the clot in may. I'm going to docs to moz if I can get in but I will give that stuff a go also I am being referred to a lung specialist in the next few months. Xx

[SusieMac]

I have constant chest pains, two years after blood clots were found in my lungs. I was told it was down to damage to the lining of my lungs and it is most likely permanent. I can barely walk up a hill, struggle walking up stairs and exercise is a no no. It's been getting me down the last few days as It seems to be getting worse so I'm going back to the doctor tomorrow to see if I need to be referred again. I'm only 34 and have a son aged 2, I don't want to be like this for the rest of my life

[noodlesrita123]

I know exactly how you I have to get a taxi to work as cant walk up the hill and its about an 8 minute walk. I'm only 26 are you on warfarin?

[SusieMac]

Yes I'm on warfarin, 5.5 / 6 mg on alternate days, plus I take Amlodipene for high blood pressure. Feel so useless and utterly fed up!

[noodlesrita123]

I'm on warfarin 6mg a day I've got asthma raynards and have had open heart surgery at the age of two how often do u get ur INR tested? I get to the point where it's takes 6hours to do my housework coz I need to rest. Do you work? I do 18 hours a week ATM it's killing me but can't afford not too.

[SusieMac]

Hi, I work full time in financial services, I love my job so dont want to reduce my hours, plus I can't really afford to, but it means that between that and looking after my two year old son, I am constantly exhausted! I used to send my ironing out but I'm now managing to keep on top of that myself and until last week, I had a cleaner to do a lot of the housework. This week will be the first time in over a year that I've got to manage it all myself and I really don't know how I will cope. My husband is pretty useless around the house, it's like having two kids to be honest. My GP has referred me back to a respiratory specialist and I'm seeing him on 2nd March. My INR is tested every 8 weeks or so, I'm due to go this Thursday to the Blood Clinic. We've got to keep going, can't let this get the better of us. Take care x

[Annslack]

If you haven't already looked at this, it may be that you are not on a high enough target for your INR . When I was on warfarin I really ill if it was at 2.5 and very poor quality of life even at three.Many of us need a target of 3.5. The other thing that I have learned about my chest pain is that poor air quality has a huge effect.I am a different person at the sea side.I can do loads of walking and even when I get tired and have pain I recover quickly. Being in a car with windows closed , being in a room with lots of people with not enough ventilation other either those gas fake fires can all bring on chest pain.I had often thought that it was caused by overdoing things when it was an air issue. It has been userful to realise and getting a bit air provides relief. I used to be house tbound with fatigue and chest pain for months when things were really bad. Those of you are really struggling it is important to see e a good specialist and persist to get the meds right. Also I found that stress is in really bad for me and I have got much better at protecting myself from it. That's a work in progress though:-). Wishing you all the best Ann

[noodlesrita123]

My range it 2.5 - 3.5 ideally 3 - 3.5 the other week it was 4.2 but I felt brilliant no chest pains or tiredness but the nurse said my warfarin had dose had to come down I was gutted now feel crap again. Stress is a hard thing as my partner is epileptic and I can't be off sick from work because Ive had to much time off. I can't afford not to work as we don't get any help with anything. I do live by the seaside. I'll be ok it's just all an effort ATM and learning how to deal with it. Thanks x

[tim47]

I am not sure how helpful my comments will be but yes, after multiple PEs which left me in ITU with allegedly half a lung working for a while in the 70s,I still have chest pain though not as severe as it has been I have had practically every heart test going and, apart from finding a hole in the heart about four years ago, nothing serious heart wise ever found. I only ever have it on left side. There have been times when it would feel like being kicked in the chest by a donkey and leave me very anxious for hours. Nowadays it's confined pretty much to sharp stabs, often when I exercise or lie on my left side. Half the lung people say it is pain from damaged lungs, half say they will have recovered. The latest says I have COPD in left side, from smoking thirty odd years ago. My gut feeling is that it is "tugging at scarred tissue" but you always wonder dont you - but I would encourage you to get it checked at every opportunity until you feel confident with what they say. If I have another big one I have been told to call an ambulance and get to hospital where bloods may be checked. It's only ever my left side by the way. I tend to stop what I'm doing for a while with the lesser ones, sit down and recover after ten mins or so . Target INR 3.8 to 4.0 and usually not too far off, have fragmin available for below 3.0. Oh, and I too now live by the sea, it was worse when I lived in the Thames Valley which a good doctor friend said would always be bad for my breathing being in a perpetually damp valley as it were.