Article on The Telegraph this morning!

[MaryF]

telegraph.co.uk/health/heal...

Mary F

[Jade]

Golly Mary you are up and reading early

[Jade]

Prof Hughes is trying so hard to raise awareness of this condition, it's unbelievable that it is such a hard fight. Especially when a cheap test could help so many people and if positive could save the NHS a fortune in wasted visits to other specialities and inappropriate treatments. Not to say years of heartache and illness.

[Hidden]

I'm so glad there has been a decent article to make up for the dreadful tabloid journalism in the Daily Mail yesterday!

[MaryF Administrator in reply to Hidden]

Yes... it was half a badly written article with essential facts missing: I am glad you have gone after it, you might be able to persuade the journalist to do another one, coming in from another angle! Mary F x

[Hidden in reply to MaryF]

The Mail is an absolute nightmare as they use freelance journalists, rather than staff, who go on fishing trips for about five stories each then only use one - all the rest are wasted. I got fed up of our media volunteers being interviewed for hours, then the story being dropped. We're lucky to have a great publicist and on-side reporters in the Telegraph and Independent, but there's only so much they can write about ... Kx

PS. Thanks for the James le Fanu link too - I do hope he will come to the next Patients' Day - journalists don't tend to bother but fingers crossed!

[MaryF Administrator in reply to Hidden]

He did write back to me and accept my invitation! He just asked for more detail, I sent him dates and times. Also The Honorary Doctors wish to come, and I am also working on one more. Mary F x

[Suzypawz]

Well done Mary for finding this, I have put a link on my face book pages too so it help raise awareness there as well

I'm still making arangements to sort my local papers out!!!

XX

[LucyLocket]

My beloved little daughter is here today thanks to taking 150mg aspirin up to 34 weeks of pregnancy

Lucy x

[Suzypawz in reply to LucyLocket]

Thats lovely Lucy x

[gemma2012]

Hi Mary I've made it to hughes! Gemma12

[MaryF Administrator in reply to gemma2012]

A big welcome to you, well done, you will find various people on here to help you, and some you probably already know... I am not officially really here, still on holiday, but wanted to say hello x M x

[gemma2012]

thank you Enjoy your holiday I wish you well

gemma2012