Any link with cancer??: In a couple of... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Any link with cancer??

Leigha profile image
14 Replies

In a couple of hours I leave for the hospital and surgery. Last year I had kidney cancer, had my kidney removed. Now they are removing just the cancer tumor from my bladder. Then, in a few weeks I come back to hospital for a biopsy of my liver as there is a bad spot found on the ct scan.

I've not read of links between cancer and APS but am just interested in personal experience of members. There is some cancer in my family, but not a lot, so am wondering if there could possibly be a link.

Thanks.....

Leigha

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Leigha profile image
Leigha
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14 Replies
Leigha profile image
Leigha

Hi Lynn,

Thank you so much for your kindness and compassion. I've found so many run from the word cancer that this year I've told very few folks what is happening. That's pretty sad, huh!

The hospital called a half hour ago; my surgery is postponed until next Friday. Strange enough having a Saturday surgery. I'm very spiritual and positive - and tough; after 23 years of illness it has been the best gift one could have to be this way! However, having folks like you respond the way you do does make a huge difference because we all need 'hugs', however they come.

I think, somehow, that APS disrupts more than is known. I do deal with a number of auto-immune and other issues (seizure disorder, trigeminal neuralgia, ad nauseum) which, while not seemingly related, may somehow be connected. And, in the long run, all connect. Medical science just does not have the answers yet.

Anyway, thanks!

Oh, my surgery is now next Friday.

And, I didn't add that humor is also important!

All the best to you,

Leigha

DorothyItaly profile image
DorothyItaly

Leigha I was just going to write and say I wish you all the best for your surgery and I hope you get the message in time and then I see it has been postponed. What an anticlimax to have it postponed on the day you were going in, unecessary stress for you. I can't say anything sensible about any potential link between APS and cancer, I just wanted to say that I agree with you that positive thinking and a sense of humour is the only way to go - hard sometimes though isn't it? Anyway, I will send you positive vibes for your operation and subsequent investigations. Thinking of you. Dx

Leigha profile image
Leigha

Ciao Dorothy,

Nothing much sensible can be said about any of this APS, etc., huh! We all do the best we can - and thank you also for your kind words. Having them now means so much; as said I've really told so few what is happening so I've mostly been my own support. And positive vibes do travel far!

This is a great group.

Leigha

Suzypawz profile image
Suzypawz

Hi hunny, I'm sorry to hear about what you are going through again with cancer :( as far as I'm aware there is no link.

I just want to send you possitive support & a virtual hug with this message to you, we are here for you, please leyt us know how you got on xx

Leigha profile image
Leigha

Thanks, Suzypawz. It's all so appreciated. Am about to go outside with my camera, I used to work in it, see photography is big with you, also. It is huge stress reliever for me, and right now I need it, seem quite shaky and up to now have been alright.

So appreciate everyones positive comments.... thank you all.

Leigha

Suzypawz profile image
Suzypawz in reply to Leigha

Hi hun, yes I find that too :) I love taking photos & capturing memories........seeing as my memory is soooooo s**t !!!

Please let us know how you get on with everything, hugs sent to you again xx

MaryF profile image
MaryFAdministrator

I hope you are OK, and that things go really well for you, things seen and caught, sending you lots of best wishes and big positive thought. Do please keep in touch with us all. Mary F x

Leigha profile image
Leigha

Gosh, bless you all for such positive vibrations. I'll keep them tight! Actually wish it was over and done, as still have the liver biopsy to do (did I tell you they've also found a spot there? - heck), so my motto is, "I will NOT give in, I WILL NOT give in, NO WAY." If I do, even for one second, then climbing back up is too hard. Your thoughts help more than you know, you wonderful people!!!

Leigha.....I am not a religious person----Spiritual yes----so I will send you positive thoughts/vibrations

and wish you all the best

Jane-Martin profile image
Jane-Martin

Hi Leigha, so sorry you are going through so much. I worried you not got much support close by. Do you not have a cancer support group you could contact? Any family or friends who could be with you? We are here for you and each one reading this will reach out for sure to support you. Sending you positive thoughts, love and a huge virtual hug. Keep us informed hon. Xxx

Kimmichelle86 profile image
Kimmichelle86

I wish you all the best! Good luck with your surgery, and take care xx

GinaD profile image
GinaD

Sorry to hear that surgery is near; glad to read your determined, positive outlook. Good luck. I'll be looking for updates.

Gina

Leigha profile image
Leigha

Thank you all! No, no support close by and going out to a support group not an easy option health wise. Heck, we each have our stories, huh. Won't bore anyone, but I'm surprised at how tough I can be and appreciate all the kind words coming in.

Take good care, each of you. A beautiful sunny day here, but fall is starting to show itself.

Check out this Dancing the Planet for some good vibrations: apod.nasa.gov/apod/ap120710...

Leigha

best wishes to you and your health. I hope all goes well.

There isn't a link between cancer and APS, but there is evidence that we may be a little protected by our lovely little cells!!

In Texas at UTMB there is currently research going on with our antibodies and apparently they can be cancer killers and this research may someday lead to a cancer treatment! Pretty interesting stuff, huh?!

Again, all the best to you!

Kristina

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