Three petitions, which could do with ... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,414 members10,623 posts

Three petitions, which could do with a lift:

MaryF profile image
MaryFAdministrator
10 Replies

The first two are world wide ones:

the last one a UK one only:

It takes a minute to sign all three and please pass them on. I care passionately about patients and staff alike, ie fair treatments and a fair working environment: I also care about thyroid issues being picked up, and also for a choice of treatments.

1. change.org/en-GB/petitions/...

2. change.org/petitions/endocr...

3. epetitions.direct.gov.uk/pe...

Thanks x

Written by
MaryF profile image
MaryF
Administrator
To view profiles and participate in discussions please or .
10 Replies
Jane-Martin profile image
Jane-Martin

I have signed all and shared. I can sign the third as a UK citizen. Much love xxx

MaryF profile image
MaryFAdministrator in reply toJane-Martin

That is great, thanks x

Leigha profile image
Leigha

Thanks, Mary..... keep these coming!

MaryF profile image
MaryFAdministrator in reply toLeigha

Thanks. Mary F x

jessielou profile image
jessielou

Hi Mary,

Signed hon, hope you well!

Hugs n love Sheena xxxxx :-) :-) :-)

MaryF profile image
MaryFAdministrator in reply tojessielou

Thanks. x

jetjetjet profile image
jetjetjet

Mary - i have not been to vocal __ sorry -- but you how ever have been just great ____ this i mean hole heartdly. my friend if you would like my personal info , i think you can message me and you are welcome--- i would try to send it to you - tried but NO WAY i can't do it. so if this is something you would like than lets do it -------------------------- jet

MaryF profile image
MaryFAdministrator in reply tojetjetjet

Thank you x

Bagpuss01 profile image
Bagpuss01

Hi Mary F, I noticed on a comment yesterday you mentioned a patient day, I have been trying to find out about this, can you please point me in the right direction. I have just been diagnosed with Hughes Syndrome and attend hospital twice a week whilst they try and get my warfarin levels right. It would be so nice to see other patients suffering in the same way and to understand a little bit more of this illness. At present I am very confused. I am also being tested for Lupus as I am showing all signs of this also.

Thanks for your time.

Samantha

MaryF profile image
MaryFAdministrator

Oh hello there, I have Hughes and Lupus, amongst other things! The patients's day happens once a year, at St Thomas' usually in May, and quite a number of us go along. Did you manage to watch the film of our last day which I loaded up? Let me know if I can give you any more info. Mary F x

Not what you're looking for?

You may also like...

Hi there,A tiny amount of help with these petitions please.

Hello So many people appear to have thyroid problems mixed in with their autoimmune problems....
MaryF profile image
Administrator

The difficulties of having autoimmune disease either one or several

I have had some truly great care over my life time, but some that has been equally appalling,...
MaryF profile image
Administrator

A thoughtful petition

Hi, Many people with Hughes Syndrome/APS end up with some sort of Thyroid problem. There is a...
MaryF profile image
Administrator

Lets not forget about this very helpful petition started Re: Hughes Syndrome

Petitions like this one, can take off if people sign and and remember to pass them on via email...
MaryF profile image
Administrator

A round up of articles from UK press

1. The Daily Mail:...
MaryF profile image
Administrator

Moderation team

See all
HollyHeski profile image
HollyHeskiAdministrator
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.