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Sticky Blood-Hughes Syndrome Support
8,551 members8,684 posts

Three petitions, which could do with a lift:

The first two are world wide ones:

the last one a UK one only:

It takes a minute to sign all three and please pass them on. I care passionately about patients and staff alike, ie fair treatments and a fair working environment: I also care about thyroid issues being picked up, and also for a choice of treatments.

1. change.org/en-GB/petitions/...

2. change.org/petitions/endocr...

3. epetitions.direct.gov.uk/pe...

Thanks x

11 Replies

Thanks Mary x


I have signed all and shared. I can sign the third as a UK citizen. Much love xxx


That is great, thanks x


Thanks, Mary..... keep these coming!


Thanks. Mary F x


Hi Mary,

Signed hon, hope you well!

Hugs n love Sheena xxxxx :-) :-) :-)


Thanks. x


Mary - i have not been to vocal __ sorry -- but you how ever have been just great ____ this i mean hole heartdly. my friend if you would like my personal info , i think you can message me and you are welcome--- i would try to send it to you - tried but NO WAY i can't do it. so if this is something you would like than lets do it -------------------------- jet


Thank you x


Hi Mary F, I noticed on a comment yesterday you mentioned a patient day, I have been trying to find out about this, can you please point me in the right direction. I have just been diagnosed with Hughes Syndrome and attend hospital twice a week whilst they try and get my warfarin levels right. It would be so nice to see other patients suffering in the same way and to understand a little bit more of this illness. At present I am very confused. I am also being tested for Lupus as I am showing all signs of this also.

Thanks for your time.



Oh hello there, I have Hughes and Lupus, amongst other things! The patients's day happens once a year, at St Thomas' usually in May, and quite a number of us go along. Did you manage to watch the film of our last day which I loaded up? Let me know if I can give you any more info. Mary F x


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